Side effects! Eczema

[TammyCross]

My side effects keep changing, even though my meds have not. This fall and winter, I developed an intermittent cold. I learned here that it is a side effect of Ibrance. Really helped to know that. Oncologist recommended Zyrtec. I never took it because that side effect has pretty much eased up.

My problem now -- aside from thinning hair and weak nails -- is itchy patches on my shins and my face. (I welcome masks.) It seems to come and go. I had this once before, when I started Xgeva for bones, but it seems my body got used to it, then all of a sudden it came back big time, and it persists.

I see that itching is a side effect of other meds, perhaps Fulvestrant?

Why can't I have a cnsistent set of side effects that I can learn to deal with?

[blms]

Where is itching?

[TammyCross in reply to blms]

Mostly on my shins. It started with something I thought was hives from the Covid vaccine. Lumps. Then they got itchy. The worst was I got these lumps that turned somewhat itchy on the left side of my face, and next to my eye. Then they turned into dry patches, then went away, but the ones on my legs, around my ankles, are permanent. The face ones came back, then cleared up again.

[queeneee in reply to TammyCross]

Hello Tammy, I have exactly the same side effects , I spend my whole time moisturising - vitamin e oil over moisturiser has worked best, with argon oil for dry patches in my hairline. I have got an appointment with a dermatologist in the pipeline - I will let you know if he/she has any useful suggestions. I think the winter weather doesn't help with dryness. My nails are fine, I take codliver oil and liposomal vit C daily.

[TammyCross in reply to queeneee]

I somehow got bumped from this site! I got no notices when someone answered, no daily posts, and I cannot see where tech support is to get back on. Once I got on today, I saw lots of notices from 2 months ago. (Also have been crazy busy.) So what did dermatologist say?

My oncologist took me off Ibrance for a month to see if it was causing the eczema. No. She is taking me off it permanently now because of slow progression.

Went to dermatologist who said only, "Well, some people get this." They don't know much about it.

[Tazi127]

Tammy...I wonder that too. Side effects change. Pain moves around..it doesn't make sense to me and does nothing but ramp up my anxiety. I've had a major rash breakout in early February. But it's gone..no change in meds. Now dealing with cramping in stomach. Is it ibrance or xgeva?? (Been on drugs for my mets since mid December 2020). Bloating and gas increase are sometimes problems but not all time. Idk..🙄...my memory is shot. Energy low one day and next day feel I can host and cook for dinner party!... I feel your pain😘. I am going to attend virtual mets coffee meetup. ( Through pink ribbon girls) I will be asking alot of questions on all these topics. From what I've read so far seems to be common issues with women taking these meds. But I will continue and hope that these issues have good results on next PET scan. Best wishes to you. Your not alone.

[TammyCross in reply to Tazi127]

Yes, I hate the energy vacillations. Mostly I am up. Then many days I peter out mid-afternoon and have to lie down. I am doing Move for Life. Sometimes I can't stop, other days I can barely make it through.

As I said to someone else, I stopped getting notices from this site. Just got back on. So helpful.

Love to hear about your mets coffee klatch.

[Tazi127]

Had one meeting over video. Not doing it again. It's easier for me to not get any deeper than my own issues. After mtg was over felt awful and hopeless. I feel for everyone and if course wish them the best but talking about it x 6 people really brought me down. So for now just enough to deal with my own awful stuff