Dear friends. Saw the neurologist yesterday. Just as I suspected, he was not the Wizard of Oz.
He was just a man and did not have an answer to why the infernal internal tremors. Upon viewing the MRI of the brain which had been determined to be devoid of cancer, decided that I had not had a series of mini-strokes, a written comment which had been offered up by someone reading the MRI. Actually, the written words were. "baby strokes" and I read that as mini-strokes. "Baby strokes" is microvascular disease otherwise known as hardening of the arteries. He tested my lower legs and determined that not only do I have neurology in my toes and my feet but also in the lower part of my legs. The infernal internal tremors continue and remain a mystery. He suggested that it was possibly due to the Letrozole, maybe a delayed side effect from the thirty-one chemo and targeted therapies I had in 2015-2016 or possibly a nervous reaction. He is going to ponder on it further and perhaps get back to me.
For me, all the scans and consultations are over for now and for now the worst is over. I have MBC from breast to liver and do not have MBC elsewhere for now including to the brain. Now, I have to get back to my life. I am always playing catch up. One of the things stuck up in my kitchen is the following.
"God put me on this earth to accomplish a certain number of things. Right now, I am so far behind, I will never die."
I hope you all have a smile and get to have a good day.
Written by
jersey-jazz
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Oh, yes! The "...I am so far behind, I will never die!" line gave me a good chuckle! Yup, I resemble that remark!
As far as the nephropathy and tremors, I'm sorry that they are part of your challenge pallet. Whatever the cause (and we often do not find out) it's good to have someone else worrying about it besides yourself. Seems you've found a neurologist that actually cares! Hooray!
So now, yes, go claim back your life - as much as you can without exhausting yourself. You'll filter out the unnecessary stuff...ENJOY needs to be the predominant theme. Enjoy your people, your places, your fun hobbies, and even the work you assign yourself. Enjoy uplifting others as you can and enjoy resting up so you can do all that other stuff.
I need that plaque! With working full time (Opening up a school building one day a week to tutor kids not going to school...I’m only going to allow 8 in my class.) I just bought a new house last August...So yea I’ll never be caught up...😂
A few hours ago, I replied to you but somehow it got away from here. What I think I said was, congratulations on your new home and that that is such an opportunity for creative expression. Also, it is amazing to me that you can do a full time job with the health issues. Well done girl!
That quote made me smile - thank you! I have a blackboard in my kitchen that the family puts quotes up on and that one's next.
It's difficult to deal with a non-diagnosis. You get tests, wait, get tests, wait, etc. and still don't know. Ugh. I sure hope you get an answer soon. At least then you know what you're dealing with.
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No Evidence of Disease!!
Feeling faint with ibrance
Abnormal CT scan of the head
CT this week--stable!
