I have many tumors in my spine from t1 to l4 along with the scapula,ribs,hips,and the lining of my scalp. I have not been very successful taking the chemo drugs to control progression. I have tried herceptin,evermestine,letrozole,afinitor,
Ibrance,faslodex,tamoxifen. I'm on xeloda right now but will be changing off this drug after my next pet scan.i have maxed out from radiation my last one was number 78.....I also had vertebroplasty in 4 vertebra to stabilize the fractures. Sorry for the long winded introduction. L2 from my understanding is a few important area as it stabilizes your bottom half, along with your bladder or bowels. For some reason my l2 keeps active . If that is the only tumor you have in that area I would radiate it. Don't let it move to l1,l3 and l4. It is definitely your decision though. I just don't want you to go through any of the problems that I have had. I wish you all the very best and your decision is yours alone . I do not respond a lot on this forum but I do read the posts every night and yours tugged at my heart 🙏🏻
Shelby
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Shelby4now
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Thanks for sharing your experience-based response....I'm sure it will be helpful to OceanBreeze...And I'm sorry about the problems you've had with various fractures, etc....
I do have a question, though. You mention that you'll be changing from Xeloda after your next scan. Are you saying that this is due to side-effects or are you pretty certain that you have progression and just need the official scan results?
Thanks for asking Lynn. The bc started 10 years ago. The second bc was 2015 the mbc
Was in 2016. Since I have not been able to stop the progression at all YET....You can just tell between the different drugs I have been on
This one is not working either. I have a lot more pain and I sleep more. They put me on palliative care a few months ago .... I don't think so I'm just going to plug along . Take care be safe
It seems to be working, cancer markers so far are going down but the side effects suck. I am doing things to help me feel better (bag balm on hands/feet, also just starting trying henna on hands, feet, have meds for heartburn, upset stomach). Last week I started feeling better. How are you doing?
Im so sorry to hear about the problems you're having. I ts hard to imagine anyone having that number of art treatments.
Have you been offered kadcyla? I too have small tumours on the lining of my brain/scalp (as well as liver lungs and spine). I was having symptoms from the tumours in my head.. My leg kept collapsing. After the first day of the first cycle of kadcyla, it went back to normal. I still went ahead with radiotherapy to that area of my head. A 'bolt and braces' approach they said would be best.
Have you had radiotherapy to the scalp? If so I'd be interested to know how you got on.
Welcome to this wonderful caring group Shelby4now. I have no answers to your queries, but I have mets in my hips, lots of my spine, ribs and skull also. I'm a fortunate one who is getting a good result from Ibrance and letrazole.
Thank you! I appreciate your opinion a lot. Everyone has been very helpful - lots to think about and ask the Dr about now. Thank you again for responding. We're all in this together and understanding what other people are experiencing is so very helpful on education and alternative treatments.
I have not had radiation to my scalp yet. I have such brain fog from all of the medication and radiation. I just don't want any more issues. What is kadcyla ? Is this a cancer drug
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Bonkers?
No more NED for me!!!
My first time outside my apt. in Brooklyn, NY since March 16th. (long, as usual)
