immunotherapy

[Anita-B]

Hi just wondering if anyone has had immunotherapy? what was your experience and what sort of results did u get?

[BeezeByTheBay]

Hi Anita. I’m on Keytuda infusions but not for

MBC. Amazingly I developed plural effusion one year into my MBC DX.. But it turned out to be metastatic lung cancer. So I am on Ibrance 100 and Femara for the MBC and I am on Keytruda infusions for the plural effusion that’s all gone. All my meds seem to be working great. No major SEs. Liver mets are gone too. So right now after 2 years of treatment I’m NED. Grateful.

[Andersl]

Hi

Yes I have had 3 cycles of trastuzasmab and pertruzamab. The first 2 I was also taking letrozole.

I stopped letrozole because i it was making me feel very unwell and I'd read that with stage IV BC it only provide an extra 3 months survival.

The main side effect was fatigue.

After 3 cycles of immunotherapy I'm now on kadcyla ...a combination of immunotherapy and chemo. Physically I feel that that is working. Next scans early may.

Hope that helps x

[Bubbles001]

I was on Tecentriq immunotherapy for 9 months combined with Lynparza (a PARP inhibitor for those with BRCA mutations) in a clinical trial last year. No side effects, so very tolerable. Had progression. I am now on Keytruda immunotherapy combined with Xeloda chemo and the side effects are few. It’s not a trial, but something my Onc suggested to help extend the effectiveness of the chemo. Only have had two rounds, but I feel like it’s working. I was having tremendous pain and inflammation in my stomach and back, but it’s gone. Even my fatigue is a lot less. I have heard that the people who have severe reactions to immunotherapy are those with autoimmune diseases, otherwise it’s not bad. Good luck with everything!

[Sharp5Flat13]

I've had immunotherapy for urinary bladder cancer. They infuse the BCG vaccine transurethral. BCG is an attenuated tuberculosis bacterium. It's been almost two years...last cysto showed a new tissue growth...which looked fairly organized to me (therefore, probably not cancer) but my oncologist wants to look again next month, and maybe biopsy it from there. If it's negative I will be cancer-free two years come September.