Did anyone on Verzenio receive a ‘wel... - SHARE Metastatic ...

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Did anyone on Verzenio receive a ‘welcome kit’??

Livinthedream profile image
26 Replies

I was on the phone yesterday with a specialty pharmacy (walgreens prime) and was told by the rep i would be receiving a verzenio welcome kit, however when my meds arrived today no welcome kit. I called and spoke to a complete moron who said no.

When i was put on ibrance I received a welcome kit so Im curious if they don’t send those out??

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Livinthedream
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26 Replies
Iwasborntodothis profile image
Iwasborntodothis

My Ibrance "welcome" kit came after the meds were delivered. We call it the "congratulations! you have cancer" kit and I actually ended up with two of them.

Livinthedream profile image
Livinthedream in reply to Iwasborntodothis

Right, i got one too with ibrance when my meds shipped. So strange a phone rep one day would ask me if i had received my welcome kit and the next day another person had no clue about anything

hdhonda profile image
hdhonda

My Ibrance kit came from Pfizer. It didn't come with my drug. Blessings Hannah

Red1246 profile image
Red1246 in reply to hdhonda

Mine too came from Pfizer but only after I signed up on their website for more info on ibrance abd support groups.

hdhonda profile image
hdhonda in reply to Red1246

That is when mine came too. I had forgotten about that. Blessings Hannah

Livinthedream profile image
Livinthedream in reply to Red1246

Right same but im asking about verzenio welcome kit 👍🏼

Red1246 profile image
Red1246 in reply to Livinthedream

Not on Verzenio so can’t help specifically with that. Just thought they might send it, as Pfizer did, once you’d signed up on website.

Btw: My package included info on ibrance plus a pill holder. Both of which I already had. For the $ they charge each month, you’d have thought the info packet would have been more substantial.

Guess that’s why their profits and ceo salaries and bonuses are so high! 😐

Livinthedream profile image
Livinthedream in reply to Red1246

Totally agree! Verzenio costs over 15k a month, even more than ibrance

Red1246 profile image
Red1246 in reply to Livinthedream

The costs are obscene. I thought $12,000 was bad enough (though my co-pay is less, it’s still substantial and I’m retired).

I’m sorry yours is so high and hope whatever you’re having to pay is much less and not stressing you out.

Let’s live long enough to see the day when Rx costs and medicine in general are affordable to all in the US! 🙏🏻❤️

Sweeten_1 profile image
Sweeten_1

I just picked it up and we're 4 packs of pills for month.

Livinthedream profile image
Livinthedream in reply to Sweeten_1

Thank you, I noticed last night the bag with the anti diarrhea med says “verzenio education starter kit” but no educational materials..... interesting

in reply to Livinthedream

Stock up on Imodium with Verzenio. I could not handle the 150 mgs. the 100 mgs, but am tolerating the 50 mgs.

Livinthedream profile image
Livinthedream in reply to

So far so good 🤞🏻 for no diarrhea

blue50 profile image
blue50

I have never received a welcome kit. Apparently they were out of stock when I started the med.

Livinthedream profile image
Livinthedream in reply to blue50

Wow how disappointing!

in reply to blue50

I never got a kit with Verzenio but I did with Ibrance but I never used any of it anyway so no big deal to me.

Livinthedream profile image
Livinthedream in reply to

I want it bc the insert on the meds are too small to read, and it should be sent to someone on these meds

Barb5 profile image
Barb5

I Never got one

I was switched to Verzenio and CVS Specialty Pharmacy fills it and I was never told nor did I ever get a "welcome kit" like I did when I first started Ibrance.

Livinthedream profile image
Livinthedream in reply to

Thank you so much, seems especially odd in my opinion given most insert papers are microscopically small and damn near impossible to read

in reply to Livinthedream

I get frustrated by the box they put it in. It's like a maze. I wind up just breaking the whole box and taking out the sheets with the pills in it. I am on 50 mg. twice per day. I found the 150 and 100 mg. doses way too much for me and only lasted two weeks on each.

Livinthedream profile image
Livinthedream in reply to

Your absolutely right about the box but thank god the punch out pill pack is ez to use. I refused the higher 150 dose bc i think its unnecessary. I just started yesterday and am on 100 mg dose. Hope i can get minimum effects, and it shrinks my tumors

in reply to Livinthedream

They don't want you to be able to read it. It's like with any legal documents or signing up for something online. You have to check off that you agree with the policy but its so tiny and so many pages, God knows what we are allowing them to do:)

Livinthedream profile image
Livinthedream in reply to

Oh I completely agree! Couldn’t find a mag glass to even read this goobly gook! So ridiculous, they could at least put together patient educational kits, utter failure

in reply to Livinthedream

You can go to the Lilly Cares website.

Livinthedream profile image
Livinthedream in reply to

I actually called and spoke to a pharmacist at walgreens prime supose to be sending me one, not convinced so wait and see

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