Welcome to the group and, as we say (since we mean it), so sorry you need to be here...
Wow, about nine years between initial and metastatic dx?! I think that bodes well for you...
Your tumor markers sound great, especially the CA27-29 which, from what my docs tell me, is much more accurate than CEA, But even the CEA has declined so sharply...good for you!
I'm glad you found your way here...there is an amazing group of people here who truly provide support, great discussion, and incredibly valuable information
I wish you the best with your treatment...Again, I'm glad you've joined...
Hi. Happy to hear about the decline in your CEA and CA 27.29 levels. That is amazing news! I think you will find comfort in speaking with the wonderful women on this site. They are all incredibly supportive and knowledgeable.
Hugs!
Welcome! Those are good numbers.
Once I realized I was not dying right away — after about two months of sadness — I lifted myself up and pushed in with the support of this marvelous group. We are here for you.
I have no tumors...just cancer cells in my lymph nodes.
I understand at stage 4 there is no cure.....however I strongly believe oncologists should promote the chance of remission .....mine promotes palliative care.
As others have said, we're here to support one another and I've found this group amazingly helpful in sharing info on their meds, side effects etc.
It sounds as though you equate palliative care with Hospice. I did when it was offered to me. They are related but different.
Fortunately I met with my palliative doc quickly after dx and she explained she is only there to help with pain meds (or those to fight nausea) and to make my life as comfortable as possible when needed. I'm only 5 months into treatment (Ibrance and Femara) and my side effects are some of the usual: fatigue and low white blood cells. I haven't needed palliative help but do take comfort in knowing the doctor is there for me if needed.
I too "don't feel stage IV". I'm guessing a lot of others don't either. I think we have this misconception when hearing the stage that our death is imminent and it's very frightening.
"It's terminal but treatable" is what I was told. I also asked for the survival statistics and I intend to prove they're wrong. They are, after all, only numbers. I have met and heard of many women with MBC who are in year 10 or more!
Glad to hear you're in good spirits and thinking positively - we need to be.
I see a palliative care doctor. Best decision I have made. It's not end of life care. She helps me with side effects of treatment, B12 shots and monthly updates. Well worth it!
She also has a therapist in her office to help with emotional issues.
Hi Candu,
Welcome on board! You sound like you have a very good attitude. I agree that oncologists need to do more than promote palliative care. I want to have the same opportunities as early stage patients, and I am hopeful of a cure. So I get where you are coming from.
Welcome CANDU! Glad you found us! We are a great MBC bunch of ladies who are highly interactive, informative & encouraging. We share the highs & lows of this roller coaster journey. ❤️🙏❤️
My doctor is very proactive...she suggested it.....my oncologist also a woman did not go along with it....but I find many oncologist just stick to their old regimen and put blinders on.
Welcome! It sounds like you are living life with a very positive outlook. I thinks it makes a huge difference! Palliative care is not just end of life care like someone else said. It will help you achieve the best quality of life that you can have. You may not need it much at this point, or maybe not at all, but they are great to have in your back pocket, so to speak! Find out what they have to offer you so that you are aware of their services.
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