I am new to MBC: I am a 20 year... - SHARE Metastatic ...

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I am new to MBC

marlayne profile image
12 Replies

I am a 20 year survivor of DCIS stage 0 (1996). I had a total radical mastectomy and 19 lymph nodes removed. I had a recurrence of breast cancer in March 2016 (8 mos. ago) and was diagnosed with stage 4 metastatic breast cancer with mets to the bones. My attitude is great and my prognosis is good.

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marlayne profile image
marlayne
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Mas3591 profile image
Mas3591

Hi Marlayne, I was diagnosed 4 weeks ago, what treatment are you on?

marlayne profile image
marlayne in reply to Mas3591

Hi my first reply. I am on Ibrance 100 mg. every 2 weeks with 2 weeks off and Femara .After the chemo I am on Neupogen for 3 days. I am also on many supplements. I am doing well.

Mas3591 profile image
Mas3591 in reply to marlayne

Hi, thanks for getting back to me..I. Found out I was stage 4 from hip pain, I have a hip fracture as a result of this. Pet scan showed two spots in hip. A 3.4 CM & 9MM. I'm on Ibrance and Faslodex . I'm scared but I trying to stay positive and hoping to see good results at my next scan. I'm glad I found this site with others who have MBC..

marlayne profile image
marlayne in reply to Mas3591

Hi. I actually had no pain...found it when I had gone to the breast surgeon for a consult on the other breast (I have a cyst that I wanted removed). I went to the appt. with a severe case of strep throat and I had a swollen lymph node under my arm. The Dr. thought it was due to the strep fighting the throat infection. 10 days later it got bigger. 9 test in 10 days. A whirlwind. I am also glad I found this site.

CichockiS profile image
CichockiS in reply to marlayne

What supplements are you taking ? What is neurogenic for?

marlayne profile image
marlayne

Hi I am taking Black Cohosh for another bout of menopause, I am taking a multi vitamin, I am taking magnesium, Vitamin D, COQ 10. I am treating at the Cancer Treatment Center of America in Philadelphia. These were all recommended by the nutritionist.

Momdablakes profile image
Momdablakes in reply to marlayne

Don't take supplements, my Doctor told me they make cancer grow.....I would take Vitamin D and nothing else..

marlayne profile image
marlayne in reply to Momdablakes

We all have to be confident with our doctors and do what is right for us and our specific cancers. Good luck.

marlayne profile image
marlayne

Hi my new friends. I am a school iibrarian/ teacher and returning to work after 8 months. I teach in a Pre-k-5 school. I am anticipating returning to work after Thanksgiving. My question is: I know there will be lots of hugs from ALL of my students. As one who does have a compromised immune system are there any words that I can use to let my students know that I want their affection but no touching. The adults will understand.

marlayne profile image
marlayne in reply to marlayne

Made it to work for 1/2 day yesterday and cannot make it this morning. Feel like I have been beaten up. More exhausted than I have been in months. Saddened by the fact that my body is not cooperating with my mind. Any words of encouragement?

daf10 profile image
daf10

Sorry to hear that you are not feeling well What type of treatment are you on? I will see if I know of anyone who is doing the same type of treatment. Maybe the best thing to do is think about working part time, working a few days at work or at home until you feel better Talk to your supervisor and let him/her what is going on

marlayne profile image
marlayne

I am a teacher (teaching librarian) in a k-5 school. Right now I am working mornings. I am on chemo every 2 weeks and will be off when I am on chemo. My district is working with me as I have been employed there for almost 17 years. I am still getting used to the fact that this is now my new normal. My colleagues (friends) are amazing as is my principal and superintendent. I am very lucky.

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