I am new to MBC

[marlayne]

I am a 20 year survivor of DCIS stage 0 (1996). I had a total radical mastectomy and 19 lymph nodes removed. I had a recurrence of breast cancer in March 2016 (8 mos. ago) and was diagnosed with stage 4 metastatic breast cancer with mets to the bones. My attitude is great and my prognosis is good.

[Mas3591]

Hi Marlayne, I was diagnosed 4 weeks ago, what treatment are you on?

[marlayne in reply to Mas3591]

Hi my first reply. I am on Ibrance 100 mg. every 2 weeks with 2 weeks off and Femara .After the chemo I am on Neupogen for 3 days. I am also on many supplements. I am doing well.

[Mas3591 in reply to marlayne]

Hi, thanks for getting back to me..I. Found out I was stage 4 from hip pain, I have a hip fracture as a result of this. Pet scan showed two spots in hip. A 3.4 CM & 9MM. I'm on Ibrance and Faslodex . I'm scared but I trying to stay positive and hoping to see good results at my next scan. I'm glad I found this site with others who have MBC..

[marlayne in reply to Mas3591]

Hi. I actually had no pain...found it when I had gone to the breast surgeon for a consult on the other breast (I have a cyst that I wanted removed). I went to the appt. with a severe case of strep throat and I had a swollen lymph node under my arm. The Dr. thought it was due to the strep fighting the throat infection. 10 days later it got bigger. 9 test in 10 days. A whirlwind. I am also glad I found this site.

[CichockiS in reply to marlayne]

What supplements are you taking ? What is neurogenic for?

[marlayne]

Hi I am taking Black Cohosh for another bout of menopause, I am taking a multi vitamin, I am taking magnesium, Vitamin D, COQ 10. I am treating at the Cancer Treatment Center of America in Philadelphia. These were all recommended by the nutritionist.

[Momdablakes in reply to marlayne]

Don't take supplements, my Doctor told me they make cancer grow.....I would take Vitamin D and nothing else..

[marlayne in reply to Momdablakes]

We all have to be confident with our doctors and do what is right for us and our specific cancers. Good luck.

[marlayne]

Hi my new friends. I am a school iibrarian/ teacher and returning to work after 8 months. I teach in a Pre-k-5 school. I am anticipating returning to work after Thanksgiving. My question is: I know there will be lots of hugs from ALL of my students. As one who does have a compromised immune system are there any words that I can use to let my students know that I want their affection but no touching. The adults will understand.

[marlayne in reply to marlayne]

Made it to work for 1/2 day yesterday and cannot make it this morning. Feel like I have been beaten up. More exhausted than I have been in months. Saddened by the fact that my body is not cooperating with my mind. Any words of encouragement?

[daf10]

Sorry to hear that you are not feeling well What type of treatment are you on? I will see if I know of anyone who is doing the same type of treatment. Maybe the best thing to do is think about working part time, working a few days at work or at home until you feel better Talk to your supervisor and let him/her what is going on

[marlayne]

I am a teacher (teaching librarian) in a k-5 school. Right now I am working mornings. I am on chemo every 2 weeks and will be off when I am on chemo. My district is working with me as I have been employed there for almost 17 years. I am still getting used to the fact that this is now my new normal. My colleagues (friends) are amazing as is my principal and superintendent. I am very lucky.