Ibrance breaks

[Barbteeth]

Hi ladies

When I had my SABR radiotherapy at the end of June I had to stop Ibrance for a week before treatment and for a week after therefore three weeks off

Since then I have another met in my liver and most likely will go through the same procedure of three weeks off Ibrance

I’ve now got it in my head that the break during radiotherapy May have caused the new met or am I being ridiculous ?? and now I’m thinking the same thing might happen again

I know some of you ladies have had breaks from Ibrance as well and wondered what you were told by your oncologist

I think I’m getting a bit over anxious and there’s probably no straight answer anyway...I’ve seen a recent post about dosage but with regards to the strength of the dose rather than having breaks from it

All the best to you all

Barb xx

[Godbeforme]

I THINK, if it was me, I'd actually take 7 weeks off and then zap it good because 7 weeks off makes it effective again if it's not doing it's job well! But that's just me, and I know thinking you know what you would do and then what you actually DO when it is happening to YOU can be two very different things. At least this would put a positive spin on the time off of it ... <3 xo GBY!

[MyMiracle13]

I think I’ve read some posts here where some ladies have had breaks of 2 or 3 weeks without any progression. I don’t have personal experience of this but I seem to just recall some posts on this forum.

[Red71]

I think that the three week break isn’t responsible either. I know personally that it is hard not to worry about anything that might make it come back. Mine popped up again and one of the things I worried about was that I’d had one too many servings of my favorite ice cream this summer. Silly! These cancer cells will do what they want and I don’t think we can worry that we are doing something wrong if we are following orders and trying to live our best life. Easy advice but not always the easiest thing to do!

The other thing is that you don’t have much choice...radiation and not taking Ibrance for 3 weeks or no radiation at all doesn’t sound like a great choice. Unless there is another choice?

I would ask your oncologist when you see him, but I think 3 weeks off won’t make a big difference. Many patients have extended time off because of their white blood count or other problems.

Stick those worries in a box and put them in the barn for now!

Elaine

[Geulah in reply to Red71]

Don't have a barn....so I try passing them on to the One Above,the only one that can really take care of it. Set a time to thank in great detail for all the things we all tend to take for granted. It helps to remember just how blessed we are. Such a challenge to stay positive, finds this really helps,and builds trust. And certainly being able to share with everyone and learn from so many examples of courage really helps.

Wishing you and everyone good news well being and recovery

[Red71 in reply to Geulah]

I don’t have one either but I know Barb has one, or something similar because she has a horse! I think we all have our own way of passing on our worries, whether it is to God, or visualization, or meditation, or whatever works for you as an individual. I think visualizing them being somewhere other than your own head, whether it be in God’s hands or being burned in a fire, or in a box on a shelf is a good way to think of them as not inhabiting brain space that can better be used for enjoying the life we have!

Speaking of enjoying life, my husband and I went to see The Good Liar this afternoon. I like anything with Helen Mirren and really enjoyed the movie.

Elaine

[Geulah in reply to Red71]

Good for you! thank you for sharing. What do you mean by a box on a shelf??interesting

[Red71 in reply to Geulah]

I visualize my worries as real things, rocks maybe, or written on a piece of paper. I put these imaginary things, the worries, into an imaginary box, always wrap some imaginary red ribbon around it, and then put it somewhere that my imagination thinks is safe but not somewhere I’ll easily come across it. I feel then that my worries are somewhere where I can get to them again if I really need to worry about something but not readily available for constant worrying. It’s just a way of not dealing with them on a constant basis. If you need to make them nonimaginary and put them in an actual box, that works too. It’s just that so many people worry about things that will never happen that this is a way to let go of them for awhile. You can revisit them if you need to but often you don’t. This probably doesn’t make much sense. It’s later than I usually stay up!

Elaine

[NPmary]

I've had alot of breaks mostly 1 to 2 weeks with no progression. Since your doc isn't changing your treatment he must not think it's the cause. I would ask him directly and get a second opinion for peace of mind for yourself.

Wish you the best ♥️

[Barbteeth in reply to NPmary]

I’m seeing her on Wednesday so will ask the question

Thanks Mary

Barb xx

[NPmary in reply to Barbteeth]

Hope all goes well. Wish you. The best, always.

[mariootsi]

My normal schedule with Ibrance is 3 weeks on 2 weeks off now because of low platelets.

[Barbteeth in reply to mariootsi]

Hi Marianne

That’s put my mind at rest a bit

Thank you

Barb xx

[Zebra2018]

I am on IBRANCE 125 every other day for this month because of low white cell.