New Research from Johns Hopkins - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

6,607 members8,142 posts

New Research from Johns Hopkins

diamags profile image
17 Replies

This looks young and promising. I like knowing they're working hard for us.

bcrf.org/blog/bcrf-supporte...

Written by
diamags profile image
diamags
To view profiles and participate in discussions please or .
17 Replies

Very interesting article! Brings hope for all of us! Thank you for sharing!

Susan1953 profile image
Susan1953

Great article. We are all living for a cure. We need more funds going to metastatic BC.

diamags profile image
diamags in reply to Susan1953

I agree. 30% is an improvement over the 7% national average, but I think at this point, awareness and screening is well known and it's time to devote way more money for a cure.

Susan1953 profile image
Susan1953 in reply to diamags

Metastatic BC is the only one that kills us. We need more funds dedicated to a cure.

diamags profile image
diamags in reply to Susan1953

I couldn't agree more.

kduck profile image
kduck in reply to Susan1953

Enough said! More funding

AvidBooklover profile image
AvidBooklover in reply to Susan1953

I have said this since I was first diagnosed in 2012 with primary and am more adamant since being diagnosed as metastatic. The amount spent telling people to get mammograms and self check is crazy for something that should be rote. Also, if we cut the number of deaths, we would cut the fear about getting tested in the first place!

diamags profile image
diamags in reply to AvidBooklover

I hear you. The problem is that pink ribbons have become big business. And telling people the true facts about metastatic disease is not a money maker. So, the executives running the walks, parties, etc. Dont want to endanger their livelihoods by spreading very bad, hard news. With that, we don't see much money going towards research for a cure. Right now, my big pet peeve is a commercial for Ibrance showing a walk for MBC. Where are those walks? I'd like to see just one.

AvidBooklover profile image
AvidBooklover in reply to diamags

I was first diagnosed in Oct 2012. It was some version of hell to have people talking about pink and all that goes with it for a month when I had done EVERYTHING like that already...and in fact in my case I had felt a lump, told two doctors, had it ultrasounded and mammo-ed and was told it was nothing for TWO years. Reality is when the doctors say they think it is nothing, and nothing shows up on tests, I am sure 99% of women will not lobby to see a breast surgeon. I made my sons three promises...1) they would never have to wear pink, 2) I would never ask them to march, as I was not marching and 3) I was not going to die from this. Sure now it's back, but I am still sticking with 1 and 2...and I am fighting with all guns for number 3.

Tam-56 profile image
Tam-56

Thanks for sharing this news. I’m glad they are working on something new!

Zebra2018 profile image
Zebra2018

Thank you for sharing. Hope for better days ahead of all us!

hdhonda profile image
hdhonda

Great news!!!! Blessings Hannah

Andersl profile image
Andersl

Thank you for sharing this article. It certainly does hive a boost to know that important research such as this is being carried out.

Xx

Lordmandy profile image
Lordmandy

Please also look into How to Keep E-cauldron away from already separated cells so they may die.

mariootsi profile image
mariootsi

So promising. Anything that brings hope is appreciated. Thank you for posting.

Jeez cancer is so complicated. The more I read, the more I realize that!!!

diamags profile image
diamags in reply to mariootsi

Isn't that the truth. When I realized that a big problem with cancer is that it's our cells that are killing us, not foreign invaders it hit me. To kill cancer cells could mean to kill our good cells because they come from the same place, just a mutation or several different. That would complicate things...

mariootsi profile image
mariootsi in reply to diamags

Yes.

You may also like...

ErSO update from the researchers

member of our group on Facebook received a very promising email from one of the researchers that...

New liver Mets and other results from scan

faslodex and it definitely appears it is no longer working.

New here; lumps from Fulvestrant; fatigue solution

Fulvestrant, which have worked miraculously on my stage 4 MBC, had suddenly stopped working after...

New trial.. saw this from another site

https://m.youtube.com/watch?fbclid=IwAR0GIyu1o0TI0ZfuKC6ddksXhxrcRm8i_H1ZKznrthZSzT6ZzYEry0MxJeI&v=5

Hello from a new member, just starting Ibrance

days ago. I was previously taking an alternative targeted therapy medication (Kisqali), but that...