Update from onc today: Hi to all of you... - SHARE Metastatic ...

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Update from onc today

Francesca10 profile image
16 Replies

Hi to all of you

I went to the onc today because of how I have not been feeling well at all. Wanted to be sure counts did not go berserk- they were ok. But I have lo grade fever. And I finally remembered to tell him about this rash I have that comes and goes and drives me nuts itchy. First time I saw him very concerned- might be from ibrance. Great- he won’t let me start next cycle which was supposed to be tomorrow.

I have to call him on Monday. He is also running a measles titer- I told him do whatever tests he wants but no this can’t be what it is. I know there is an epidemic of it in NY and NJ; I think he is over cautious. We discussed the mixed results again- he said if they are new it depends on how resistant they are to meds-faslodex, ibrance. He would be more inclined to have them radiated but depends. Omg! My tumor markers just stabilized and this month showed slight decrease. He said he knows- just not sure about radiation now. Wait n see. Ok- I am getting better with that but I will drown my body in Benadryl if need be. I have a sense the rash May be from ibrance also but so not ready to change that. I made an appt with dermatologist anyway.

I miss my grandchildren. I was out of work 2 days and went today for few hours. The whole family has sore throats and colds.?! Their son had it Monday and I was already feeling so run down, easy to get sick. The last month I really pushed hard to be there for my kids n grandchildren when they lost daughter in laws dad. Also pushed myself to go upstate to see mom Mother’s Day. Love just kept me going. Now my doc sent me home to bed. Ugh!!!!

So I will rest, pray fever goes away fast and look forward to all of you💕

Love

Frances

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Francesca10
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16 Replies
Francesca10 profile image
Francesca10

Sandra, you always lift me up.💕it’s not measles. I know how doctors can be working with them for almost 40 years😂. I felt his concern and just let it be. I won’t stop ibrance and he is not so inclined to also. I saw an ent doc three years ago who told me I should live on the moon😳because of the allergies I have. Talk about getting perspective! Hah here’s to mbc!!!

Thanks Sandra love being sent to you.🙏🏻💕

Julie2233 profile image
Julie2233

Sometimes we just have to stop but it's hard to do that 😊💕

Francesca10 profile image
Francesca10 in reply toJulie2233

Yes Julie I find that so h

Julie2233 profile image
Julie2233 in reply toFrancesca10

Me too, feels like giving in to the enemy 😊

Francesca10 profile image
Francesca10 in reply toFrancesca10

This phone makes me cuckoo😳yes I find it difficult to stop. I am so used to having energy- guess my batteries need charging!♥️Xxhugs

mariootsi profile image
mariootsi

Rest up Frances! You have been around sick people and are probably very run down.

Selmac profile image
Selmac

Francesca, you can get a rash from Ibrance. Take an allergy pill every day. It helps a lot.

Kimr2081 profile image
Kimr2081

Wow you have had a lot on your plate. I sure hope and pray you start feeling better soon. When I first started on xeloda it caused a rash on my arms. My onc gave me a steroid cream but I really didn’t like using it. I made my own remedy with essential oils. Some fractionated coconut oil, frankincense and melaleuca oils and it worked much better.

Sending you hugs and prayers.

Kim

Timtam56 profile image
Timtam56 in reply toKimr2081

Kim.... by melaleuca oil, do you mean tea tree? Or is there an actual melaleuca oil?

Kimr2081 profile image
Kimr2081 in reply toTimtam56

I think it’s really the same but they do have an oil called melaleuca. I get my oils from doTerra.

Francesca10 profile image
Francesca10

Thank you Kim will try that💕

Francesca10 profile image
Francesca10

Thanks Sandra

At 65 couldn’t take the high maintenance anymore!💕💕

Arkait profile image
Arkait

Hope you are feeling better Fever is actually good for cancer (cancer doesn't like the heat) so maybe you will enjoy that part of the fever. Best wishes.Mary

Timtam56 profile image
Timtam56

Rest is the best thing for repairing our bodies Francesca. Try to enjoy it and let go of any other worries but yourself. You are the most important one right now.

Francesca10 profile image
Francesca10 in reply toTimtam56

💕

Hi Frances,

How are you feeling? Are you getting better? It sounds like the best thing you can do is get some rest. I know that is easier said than done.

Take care,

Sophie

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