Longest time on Xeloda?: Getting a bit... - SHARE Metastatic ...

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Longest time on Xeloda?

BangorBelle56 profile image
13 Replies

Getting a bit ahead of myself, but think this is my next port of call 😀

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BangorBelle56
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13 Replies
MacroMom profile image
MacroMom

2 months, hoping for 2 years! I’ve seen someone post here that was on it that long. Just want to send a little encouragement....my CA 15-3 has dropped 330 points in the two months I’ve been on Xeloda and I truly feel better than I have since diagnosis almost 2 years ago. I had very mild queasiness the first few days and felt a little more tired but as the weeks have passed I don’t notice a difference between my Xeloda on and off weeks. No issues yet with hand/foot syndrome, perhaps because of my lower dose (1300 mg am/pm) and 7 days on/7 days off schedule. If you do start it I wish you the same results. We can be Xeloda buddies! And your view is exquisite!

MMMP profile image
MMMP in reply toMacroMom

I feel pretty good about getting 3 years!! Stay on it as long as you can ..... now I’m in my 3rd treatment and nothing is working like the xeloda did!

MacroMom profile image
MacroMom in reply toMMMP

That IS encouraging, thanks!

BangorBelle56 profile image
BangorBelle56 in reply toMMMP

Wow that is great news for us all. What are you on now and whats mets do you have. Ruth x

MMMP profile image
MMMP in reply toBangorBelle56

Afinitor and examethane - just in my bones.

BangorBelle56 profile image
BangorBelle56 in reply toMMMP

Thanks

BangorBelle56 profile image
BangorBelle56 in reply toMacroMom

Thanks x

Francesca10 profile image
Francesca10 in reply toBangorBelle56

Xeloda is my next step. Scared of side effects, anxiety coming back. Hate this damn disease.

BangorBelle56 profile image
BangorBelle56 in reply toFrancesca10

I am sure you will do great on it x

mariootsi profile image
mariootsi in reply toFrancesca10

Damn cancer!

jstickrod profile image
jstickrod

I am on my 5th month of Xeloda, and feeling pretty good. Fatigue is my worst side effect.....some months are better than others. But my tumor markers continue to decline, and I feel positive about that! I want to be a Xeloda buddy, too! This site keeps me hopeful and wonderful to communicate with fellow sisters who are in the same situation!

Francesca10 profile image
Francesca10 in reply tojstickrod

Thank you for that encouragement. Starting this week😳🙏🏻💕

mariootsi profile image
mariootsi

Most women here seem to report good results on Xeloda with few side effects.

I hope and pray it will be your magic bullet to kill off your damn cancer!

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