Tamoxifen

[Maludagui]

Hello beautiful ladies 💕 I have a curiosity.

How many of you took tamoxifen and for how long ???

After you finished taking tamoxifen how long did it take to diagnose metastasis ???

In my case I took tamoxifen for 6 years, a perfect year and the next I was diagnosed with metastasis in my left hip. I am convinced that tamoxifen protected me somehow. What do you think about this ????

Thank you for being present in my life 🌺🎀🌹

Mara

[Julie2233]

I’m sure the tamoxifen was giving you some protection. I’ve been told that I would have received it for 10 years possibly 15 (I was 49 when I started taking it). Unfortunately I had a lot of severe side effects with it and after exactly 1 year my oncologist took me it off it for 6 weeks to do blood tests to check hormone levels. Because I couldn’t get an appointment to see her - I got lost in the system- it was 3 months before I saw her (and was without any medication during this time) and the day before my appointment an mri of my hip taken to look for arthritis found the mets.

[laurac1014]

When I was prescribed Tamoxifen back in '09 it was for 5 years. I quit taking it and going to the oncologist after 3 years. Was never a good pill taker, until Now. I did see the protocol had changed to 10 years but thought I was off the hook.

[Hidden]

When I was on tamoxifen, the protocol was still for five years only. I took it from 2003 to 2008. Diagnosed with mets in May 2018. We'll never know if ten years of tamoxifen would have prevented my mets.

[Barbteeth in reply to Hidden]

Because my initial breast cancer was in 1994 I had no medication although tamoxifen was available then

My mets came last year so 24 years with nothing

I often wonder if things would have been different if I’d had tamoxifen..no point really to wonder as I’ll never know

Barb XX

[PJBinMI in reply to Barbteeth]

That long til mets does bode well!

[Barbteeth in reply to PJBinMI]

I do hope so

Barb xc

[Cshipley123]

I took it for 6 years

[Red71]

I took Letrozole for 5 years. At that point they said I could stay on it or go off but that I was such low risk that they really didn’t need it. Three years later I was diagnosed with mets to spine, hips, and ribs. I would guess that staying on it would have prolonged the period before diagnosis but it would have shown up eventually.