Scan anxiety! : Hi Ladies, I’m having... - SHARE Metastatic ...

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Scan anxiety!

Ppppopp profile image
18 Replies

Hi Ladies,

I’m having my first scan since starting Ibrance/letrozole on Wednesday.

My stomach is in pieces and I’m convinced it has gone to my liver(previously just lymph nodes away from breast) I’m going crazy!

My oncologist felt the lump on my breast 2 weeks ago and it has halfed insize come 1.4mm. I’m guessing if it worked on the lump it’s worked on the lymph nodes? Can it travel to the liver in 3 months.

Any of you lovely ladies experienced this?

Xx

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18 Replies
Maludagui profile image
Maludagui

Hello 😘🌺 You will be very good. You are a warrior 🌸

Ppppopp profile image
Ppppopp in reply toMaludagui

Thank you. Means a lot.xx

Ppppopp profile image
Ppppopp

Thank you so much Sandra! Really helps to hear this.xx

Ppppopp profile image
Ppppopp

That’s exzactly what I was doing in my husbands arms tonight- planning my demise. I feel so much better hearing you felt the same too. Thank you for taking the time.xx

MyMiracle13 profile image
MyMiracle13

Hello. I know where you are coming from. I absolutely hate scans and 2 or 3 days before the scheduled scan, I couldn’t sleep. No matter how I pray or try to stay calm, it just doesn’t happen. But so far, except for the scan that diagnosed my MBC, I haven’t had a bad one. I’m 1 Year from MBC diagnosis and hope to live a long time too. But I don’t think the scanxiety will ever go away. Just ride it out. Actually, it’s the waiting for results that’s worse I think. I don’t believe I’m actually helping here but at least you know that you are not alone🙂.

You will be okay though. God bless!

Maria

Ppppopp profile image
Ppppopp in reply toMyMiracle13

I know all to well about the sleeping. It’s been a weeek now! Thanks for letting me know I’m not alone. Luckily I get my results 2 days later. So not to miuch waiting, you are right that really is the worst!!xx

Southside25 profile image
Southside25

First, the fact that the mass has decreased in size is excellent! A real reason to feel positive. That being said, know just how you feel. I'm going in Monday for my fourth set of scans since starting treatment. I've been stable for over a year, but still worry. I know some day, the results will not be positive. I wish I could sleep until Monday morning. I hate this! But all we can do is hope for the best.

Ppppopp profile image
Ppppopp in reply toSouthside25

Yup, that’s how I feel. You just want to shut away from the world. Good luck for Monday. I’m praying all will be ok for you too!xx

PJBinMI profile image
PJBinMI

I misread your first sentence and thought you had just started Letrozole and Ibrance this past Wednesday and was wondering why a scan so soon! I'm a long timer--15 years with denovo bone mets. Scans have gotten less anxiety producing for me as time has gone on and I've had more of them! Unless we have a rip roaring aggressive cancer, one scan is not likely to be predictive in a big picture way! Now my prayer for each scan is that anything that needs to be known, will be shown. I've learned to at least try to separate what I can control and what I cannot control! I don't have direct control over the blasted cancer cells, but I can control things like keeping appointments, taking meds, and continuing to do things that bring joy or meaning to my life. Heavy duty gardening is out of the question, but I can do a bit of weed pulling, fertilizing and planting a few annuals. I no longer make elaborate meals but I can still bake a pie, make yummy potato salad, and scramble an egg. Our pets help me live in the moment--dogs don't plan ahead much! lol And, thankfully, my sense of humor is pretty much in tact! There are alot of crazy things that come with this blasted cancer and if we can find bits of it to laugh about, that sure helps -- it least that works for me! It's also helped to work on thinking long term and not focusing too much on results of a single scan! Once you know that treatment is working, that helps alot. At least it has for me. But the first months or couple of years were really the worst emotionally for me. I don't think I am alone in that. And it helps to have on line friends with mbc!

Ppppopp profile image
Ppppopp in reply toPJBinMI

Wow 15 years! That alone has given me such hope. It’s so amazing to hear from ladies like you. Thank you for all the wonderful tips. I’m glad to hear I’m not alone. It’s been 2 months since my mbc diagnosis and it really is up and down. Great to hear I’m not alone. Thank you for taking the time to write.xx

PJBinMI profile image
PJBinMI in reply toPpppopp

The first months were definitely the worst for me! But it really can get better! And there are more treatments available now than when I was diagnosed. More and more of us are living longer and longer. I have adapted and am pretty content these days even though I am tired!

Ppppopp profile image
Ppppopp in reply toPJBinMI

So, so good to hear. Thank you.xx

mariootsi profile image
mariootsi

Scanxiety is real and torturous! But if your lump has shrunk that is wonderful. Good results will be coming your way!

I always feel the stress most in my stomach too. Like it's spasing in one big knot. It takes a couple of days for it too recover from the stress.

I am sending positive vibes to you and remember to breathe!!!!!

Ppppopp profile image
Ppppopp in reply tomariootsi

Thank you!xx

mariootsi profile image
mariootsi

Damn cancer!!!!!!

Ppppopp profile image
Ppppopp in reply tomariootsi

Really helps to hear got all you ladies! Really appreciate it.xx

Kimr2081 profile image
Kimr2081

You are in good company. I think we all feel some anxiety before scans. I have my next set on Thursday but am trying not to go crazy over them because it’s not going to change the results. Mind you this is easier said than done. Hang in there and try and keep busy for the next few days. It’s waiting for the results that make me

More anxious. I am fortunate in that my oncologist usually has the results in a couple days.

Kim

Ppppopp profile image
Ppppopp in reply toKimr2081

Thanks! Me too. Scan Wednesday results Friday. Waiting is the absolute worst. Praying for good results for you too.x

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