I was diagnosed with stage IIIb lobular carcinoma in April of 2011. I had health insurance under the expanded Medicaid (thanks to the ACA) after 7 years of no coverage thanks to my pre-existing condition (thyroid cancer in 1999). I went through a lumpectomy followed by mastectomy, 6 months of chemo, 6 weeks of radiation and 5 years of Letrozole. It’s a 200-mile round trip for treatment.
In 2017 I lost my Medicaid coverage. I now have insurance through my work, but my deductible is $5,000 and $500 a month in premiums. Until you reach that $5,000 deductible they don’t pay for anything. I can’t afford the tests to see if my cancer has spread. I haven’t been to the oncologist in 2 years.
What symptoms did you have that made you think you might have MBC? I am 62, otherwise healthy and exercise regularly. I have more aches and pains than I’m used to, especially my lower and middle back.