I’m on Ibrance. My 6th month. Seems that every month between day 15 and 20 I get new aches. Yesterday I woke up with severe pain in my left back ribs. Today it’s across the whole upper back. Across the ribs. Painful to breathe deeply. My petscan 2 weeks ago was good - no progression and diminishing tumors. Does anyone else have this sort of reaction?
Thanks Gwennie
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Gwennie123
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I get this a lot..different places hurt..I always have pain where my fracture was but other pain that changes all the time..at the moment it’s my lower back..then it’ll be ok for a few days..I suppose it could be side effects from the hormone drugs we take..letrazole has a bad reputation for causing joint pain
Hi Gwennie, I have mets in bones, liver and lungs. I get pain across my ribs at the back, especially if I have been standing for over an hour. A sit down for 10 minutes seems to ease it. If it is too bad and in lower back I take paracetamol. I am on Ibrance/ letrozole and denosumab, calcium. Sick of counting pills and ordering new ones. Yesterday the clinic would not give me my xgeva/denosumab jab because my calcium level was too low, so I have to increase the calcium and try again in 2 weeks. The neutrophils have gone up so I can start palbociclib again after a 2 week gap. Any one else having these issues.? Take care Gwennie, I suppose it is the mets making sure we don't forget them! Fay
I had that problem just once and I couldn’t have the denosumab injection..I was told to double the dose of my calcium supplement..I have the Adcal chewable calcium/Vit D tablets and take 4 daily
Like you I’m sick of pills...I keep all mine in a little wicker basket and the other day I was plodding about in a scruffy dressing gown popping pills..hideous sight to behold..hardly know this new me..ugh
Thanks. I don’t usually complain but every time a new pain comes up I think I’m plunging into new territory. I have to remember that we take poison to kill poison. Hugs
Around day 10 or 11 I wake up and hurt all over. Ribs are the worst. This last dosage reaction was so severe I was sent to the ER with heart attack symptoms. Tests say my heart is fine, it was the meds. Sigh
I also seem to be getting more back..shoulder pain.thinking it was my bed ..but its not ..also in my hips . my 8th month on treatments ..metastic breast cancer came back .. right breast in 2016. Long journey ahead.
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