Can Bone metastasis be sore sometimes when not active ?

[Ycats277]

pet scan 4 month ago said no sign of disease or recurrence. I only have Mets to bones in ribs on one side , they healed but left scarring . I care for my mom with severe dementia ,causes me frustration. I try to be calm, I get uptight and hold my stomach tight . I’m have mild soreness in my ribs when moving sometimes. Can my Mets be sore without being active The slight soreness is only there when I move to get up . Help , scared

[Hidden]

Your meds can cause some soreness, sometimes pain. It's another side effect. Don't be scared. It's just a part of things we have to put up with. I had that for about 3 years. Sometimes it was very painful! It's almost gone most of the time now. Have a beautiful day! ❤🙏👍

[Ycats277 in reply to Hidden]

I can always count on you . But I am scared because I feel the soreness right where my Mets are and I wasn’t feeling anything . He changed me from zometa to Xgeva this last visit 3 weeks ago . You think maybe that could be it and it’s not coming back alive and spreading . I need to stay Alive to take care of my mother she has nobody. I would never die in peace knowing she had to go to a home. I have a sister but she is in her own life with her family and I take care of my mom by myself. How are you feeling.?

[Ursula_I in reply to Ycats277]

I can't help you but I wanted to say what a wonderful daughter you are x

[Ycats277 in reply to Hidden]

Always so helpful my friend ❤️👏🏼🌹😍

[hdhonda]

Grebnesie,

My Mets are in my lungs, so I don't know anything about bone Mets. But I do have aches and pains various places off and on and attribute it to age but then I am old - 75. Wishing you healing and no pain. Blessings, Hannah

[Ycats277 in reply to hdhonda]

Blessing to you , ❤️👏🏼🌹🥰

[Zebra2018]

First, I wanted to say wow, you’re such a wonderful daughter and a beautiful soul! I have MBC to my neck bone. After radiation the doc told me I will develop arthritis on that area so I visited a PT and she showed me a couple of simple stretches to do everyday. Still I have some discomfort on that area but all in all I am ok. I am on IBRANCE, faslodex and xgeva since diagnosis on November 2018. God bless you and your MOM.

Again thank you for being such a fantastic daughter but don’t hesitate to ask for help from your sister

🌷❤️‍🩹🥰

Sima

[Ycats277 in reply to Zebra2018]

You are so nice 🌹❤️💐

[Ycats277]

So nice thank you ❤️👏🏼🌹

[Pachira]

I just stopped Xgeva and I was thinking today that I don’t feel as creaky as before. I still get an uncomfortable feeling where I cracked a rib 4 years ago. I think stretching is really the best answer. If you’re caring for your Mum then you could be moving awkwardly at times without realizing. Chris

[Ycats277 in reply to Pachira]

That’s true , thanks 🙏🌹

[Ycats277 in reply to Pachira]

I’ve been stretching and I am feeling better sometimes , thank again 🌹❤️💐

[Pachira in reply to Ycats277]

I'm so glad to hear it. The old saying if you don't use it you'll lose it, is true. However caring for a house and an elderly person is very taxing on the body. You tube has a lot of exercises that you can utilize. It's hard to make time for yourself but it's imperative that you do. Take care of yourself Chris

[Ycats277 in reply to Pachira]

Thanks Chris ❤️🌹💐

[Bettybuckets]

I have had stable disease for over a year on ones Ce and faslodex but I can still feel the cancer in my hips and back… I call it discomfort but not pain. I wish I didn’t feel them as it makes me anxious but I know this is the good years so try to just roll with it and enjoy myself!

[Ycats277 in reply to Bettybuckets]

I’m doing some stretching as per advice above and it is helping 🌹❤️💐

[Ycats277 in reply to Bettybuckets]

And praying by the time the bad years come there will be a cure or 2 ❤️🌹💐❤️‍🩹

[Ycats277]

Awesome 🌹❤️🌹❤️

[SeattleMom]

Do you take any bone strengthener like Xgeva? It helps stabilize bones but can also cause aches as side effect. Linda

💗💗🙏🏻🙏🏻

[Ycats277 in reply to SeattleMom]

Yes I am on Xgeva, I just started it three weeks ago I was on zometa-for three years. Someone told me to stretch and I tried it I’ve always been scared to do any exercise heavy lifting or stretching because I’m afraid to break one of my ribs. But I gently stretch my arms up to the ceiling four times and believe it or not a few hours later I am pain free . It really worked. I think I’m going to gently stretch every day. Or go down to the pool and gently stretch. I can’t believe the difference.🌹❤️🌹❤️

[SeattleMom in reply to Ycats277]

💗💗🙏🏻🙏🏻HOORAY!!

[GollyG]

Hi there, I have quite extensive bone mets and experience various bone aches and pains but scans have always been stable. Bone strengtheners can certainly result in flare-ups of pain. It's hard - once the worry about progression sets in, everything becomes sinister!

[Ycats277 in reply to GollyG]

You are so right , ty ❤️🌹❤️🌹

[Bettybuckets in reply to GollyG]

Golly G- glad you said that cuz it seems like everyone who posts here somehow lives pain free for a long time. I’m stable and often have bone discomfort… not quite painful yet.

[Ycats277 in reply to Bettybuckets]

I have discomfort more then pain . Someone said to me you need to stretch. I’m so is afraid to stretch that I might break a rib that I do everything very gentle. So I decided I would get up and I would stretch like reaching for the ceiling gently and slowly. And believe it or not I feel much better right now than I felt in the last week.Not immediately at a few hours after I stretched I realize that that aching was gone and the Soreness is gone. I wish I could find that person that said that and thank them. I only did four reaches up to the ceiling with the arm . Amazing 🤩🌹❤️😘

[8576]

I have bone mets and lung mets. I sometimes get brief pain in those areas. I also have severe osteoarthritis in both knees. and some in my hands. So maybe that contributes. I don't know how you manage your disease and look after your mother. So difficult. Can you apply for some help with PSW's coming in every day?Hope this helps.

Cheers, June S.

[Ycats277 in reply to 8576]

She tells me if I get anybody in that she will leave and I will never see her again. That’s a threat that I cannot take a chance of coming true. She’s not the mother anymore that I grew up with. If I don’t feel well and I mention it she ignores that . The mother that I loved in my whole life cared for me we were best friends, put Band-Aids on my wounds and wiped my tears. She’s gone.I will do my best as long as I can to care for her. If I go, or when I go I will not know so the choice is made for me . I cry a lot for me and for her . Seems I’m crying way more then not . It’s very hard

[Bettybuckets in reply to Ycats277]

I’m so sorry! That you had to loose your mum earlier… would have been better to have lost her grieve snd miss her than this challenge of seeing her in a new less helpful State.

[Ycats277 in reply to Bettybuckets]

I know but she gave me life and was the best mom for my entire life even my diagnosis , surgery and chemo . I can’t help but think deep down my illness it will caused hers. I think it was too much for her to watch me die that she just left. Just what day she started acting weird and I took her to doctors shit brain scan said every credit test you could possibly imagine. She was getting worse and worse, Every day I saw a difference and all the doctors kept doing was putting or a different medication. Now she’s in and out, but she’s a real trooper because she was diagnosed with lung cancer that metastasized already to the other lung . Now I take her to my oncologist for her chemotherapy treatments every three weeks and the week later I go for mine so week three and week four I’m at my oncologist office for hours. It’s life that’s took a turn. So I have to do what I can’t for her as long as I can because I love her so deeply.

[Ycats277 in reply to Bettybuckets]

Oops a curse word was written by accident with other errors , sorry better not speak my texts anymore . Sorry again fir my foul language . Lol

[8576 in reply to Ycats277]

So sorry for your situation. Pretty tough. Sometimes it takes baby steps to get someone to agree to a new idea. Would she at least agree to have an appointment and meet with a psw? Your Mom is using emotional sabotage probably because she is so worried. Family sometimes doesn't realize the problems. Are there other family or friends who could talk to her. I know my husband never listens to me. Just other people! Someone not so close as you are and who she trusts. Just a suggestion.

Crying helps relief emotions and so isn't bad unless it goes on too long. Then you really need the help of a social worker to come in and talk to your Mom and you. I am sure you are not the first one to be in this situation and they may have solutions. There are resources out there. Reach out. Thinking of you and wishing you well,

Cheers, June S.

[Ycats277 in reply to 8576]

She’s very stubborn I changed her doctor to a doctor that comes to the house thinking that may be at the house it would be more personal and I would be able to reach out for help. They were very nice the doctors and the staff but they didn’t see it the way I do. They just thought it was wonderful that she has me, and she’s so lucky to have me. They didn’t look at it like I have stage 4 cancer and I can’t do this. I’m not somebody that asks for help easily or at all. It was all about her care she has lung cancer on top of it so I’m taking her for chemotherapy and my oncologist office so I go once a month for her and once a month for mine. She’s doing well with the lung cancer her tumors have shrunk. My oncologist doesn’t say a word to me. He’s a great doctor but he doesn’t say a word. People say then what makes him a great doctor. He just knows his stuff, my pet scan is so good my mothers cancer has shrunk to almost nothing. I wish she was a dementia doctor. I just don’t know what to do. Thank you for all your kind words and suggestions🌹❤️🌹❤️

[8576 in reply to Ycats277]

You are welcome. All the best too you.

Cheers, June S.

[Ycats277 in reply to 8576]

So sad 🌹

[Ycats277]

It’s so sad , ty 🌹❤️

[TammyCross]

You have gotten so many wonderful replies, I think you have all you need, but I will chime in anyway, because I have been in similar circumstances. My mother, who had been concerned about me above all, became self-centered for the first time in her life after a stroke and needed 24 hour care. Same situation in that she wouldn't accept help from anyone else -- well, there was one other, but she had lung cancer and lived in another country and only came a couple of times in three years. I did get aides. I was there with them. She accepted that, finally, when I got the right ones. I did afternoons and nights, and they had a routine of bringing her breakfast, cleaning her up, and then they sat quietly. They changed her sheets, things like that. I was in and out so she knew I was there and in charge. It was stressful as hell, but it certainly helped that I had peaceful hours every day when I wasn't really needed, and I could talk to the aides, someone to discuss things with, and a bit of entertainment for her. Some of the aides sang, some danced -- sometimes with me. Cracked her up.

I sometimes just broke down with the stress in front of her. She finally got it. One time she said, "I don't know what to do." About what? "About me." I still feel guilty about that -- that I got across what a difficult time I was having, but didn't give her a solution. I also surreptitiously put her on a mild anti-depressant. It made it easier to deal with her, made her less hard on me. I don't know whether that is possible with your mother's diagnosis.

As for soreness, I really hurt. Mostly at night, overnight, my bones hurt, my joints hurt. Lately, my feet have hurt and I have been limping around. I started taking Zoom dance/mild exercise classes for people with cancer. They are gentle, and always suggest modifications if you have particular areas or movements that hurt or worry you. I am always so surprised that it hurts to move, but I don't notice it when I am taking the class and then after I am not limping or hurting.

I think it might be a result of the Xgeva I am on, and the SERD I am taking. Not sure, but I get Xgeva injections every three months. Had one a couple of weeks ago and the stiffness and fatigue are much worse than they were at the end of the three months off.

My primary doctor recommended a physiatrist, apparently the MD equivalent of a physical therapist, specializes in bodily aches and pain. I am going to try that, although I seem to have little time. One advantage is that I believe an MD is covered by insurance, whereas PT has limited coverage. I hesitate, though, because the dance classes work. I recommend it -- it's free. Called Moving for Life. It is in NYC, but with Zoom, it doesn't matter, except for time of day.

[Ycats277 in reply to TammyCross]

That post starting with has anyone told you lately was meant for you , lol 😘

[Ycats277]

Has anybody told you lately that you are wonderful ? Well I am you are wonderful to take the time . I feel I’m not alone . Soon I am going to have to get an aide , this morning was one of the worst . I love her but it’s not her anymore . I cry a lot . My body hurts and just started Xgeva 3.5 weeks ago , I’m in monthly injections . I wonder why . I’m scared now if I feel this bad now how I’m going to feel after Tuesday’s injection. I also get Faslodex injections in my tush and they hurt bad last time all bruised . Can I complain any more lol , I really am not a complainer so this bothers me more than anything. Again you are so kind and we have a lot in common. Thank you for your response you are so so awesome🌹❤️

[NPmary]

Yes, it hurts and it is pain. I have it. The cancer either eats bone away or adds bone onto bone or can do both. If there is inflammation. Change in barometer/weather there is swelling in the bone and it hurts or it just hurts cause it does. It sucks. If you find out you have progression remember you have already been living with it even though you didn't know it yet. I don't think you have progression. It just hurts. I'm sorry.

[Ycats277 in reply to NPmary]

Thanks 🙏

[NPmary in reply to Ycats277]

Your welcome, wish you the best.

[Ycats277 in reply to NPmary]

I’m stretching a little and I’m getting some relief. I lay in my bed flat and stretch . I stand and reach for the sky . 🌹❤️💐