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Just a little panicked. I did't think I would be...

Thrifty51 profile image
73 Replies

A little background, I was diagnosed with MBC after a fall and a broken hip Nov. 4 2018. I heard the docs talking about my oncologist, didn’t have one as I didn’t know I needed one, while I was in recovery from a partial hip replacement. Surprise, like the hip issue wasn’t enough! I had HR+Her 2 – back in 2004, recovered and never gave it a second thought. On Nov 27 while just walking as part of my PT the left hip broke and I again am in the hospital for a second partial hip replacement. Life can really suck sometimes.

I’m on my second oncologist, as the first was totally incompetent, the new one is wonderful and has a dedicated oncology pharmacists who calls me at least 3 times per week to see how I’m getting along with my new best friends “Kisqali and Femera “. The doc recommended Kisqali vs Ibrance as it doesn’t have the blood clotting side effect since I already had two of those while in the rehab hospital.

Now the panic issue: I just finished my second round of medicine and the pharmacist is talking reducing the dose because of the usual side effects: chills, fatigue, pain, etc. For Kisqali the reduction will be from 600 mg to 400mg as that’s the way the pills come in 200 mg increments. I had read so much on here how many of you are fine with the reduction as it supposed to work the same but now that my time has come I’m not nearly as okay with the decision as I thought I would be. We haven’t even gotten to my first set of scans to see if it is working. The pain has reduced over the past two months but I can’t tell if the pain is lessened due to healing from the hip surgeries, arthritis medicine, or less cancer but it has reduced. I did have 10 rounds of radiation which has caused lymphedema in my right leg where the surgical scar is located.

Anyway, I am just ranting a little today to alleviate the panic and to say hello. I’m 68 and a retired accounting professor who needs to finish her taxes soon. We should get a pass from the IRS with this disease but I know that won’t happen. Blessings to you all. You are such a blessing to me!!!

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Barbteeth profile image
Barbteeth

Hi Thrifty

If I was you I would ask your oncologist if you can have a scan first before reducing the dose unless the side effects are unbearable

I’m on Ibrance which is similar and was put on the lower dose almost immediately due to low neutrophils after 2 weeks

I know we’re supposed to follow advice from the professionals but also I think we should sometimes question things as well especially if not happy about something

I was adamant that I wouldn’t take my oncologists advice about taking an antidepressant and argued for a couple of months but in the end I gave in and I’m glad I did now ..I think she thought I was being difficult but I like to have some control over my treatment

Hope that helps

All the best to you

Barb xx

Thrifty51 profile image
Thrifty51 in reply toBarbteeth

Thanks for replying. I will ask the doc for scans before changes. Most of my treatments were delayed while I recovered from the hip surgeries so I did not get a base PET scan until the first of February. Of course changing oncologist added to that also. I hope insurance will cooperate.

Toomanyquestions profile image
Toomanyquestions in reply toBarbteeth

Hi Barb, how are the antidepressants going? I’m beginning week 4 now and they’ve suggested I go up to 20mg, which I did yesterday X

Barbteeth profile image
Barbteeth in reply toToomanyquestions

Hi

Well I’m crying and feeling low moods coming back

Seeing my GP Monday to discuss

The pain makes me depressed and I’ve tried taking the strong meds that some ladies on here told me I should do..and it makes sense..but I feel crap on them they disturb my digestion without going into detail!!!

Do you know if taking the 20 mg citalopram will bring back the horrible side effect that we had to put up with when starting the 10 mg??.. don’t fancy all that again..I’ve lost 7poundd since I started those

Barb xx

Toomanyquestions profile image
Toomanyquestions in reply toBarbteeth

Not sure but I’m feeling TERRIBLE today and I only increased yesterday. My pain is okay. It’s my emotional pain realising all the things I wanted to do with my children are now not possible. I still can’t use my legs properly since my operations. I want to believe I’ll make 5yrs but I have so little energy and I’m so stressed. Most people on here are so positive and I feel bad posting negative thoughts X

Barbteeth profile image
Barbteeth in reply toToomanyquestions

Don’t feel bad...it’s normal

I’m very low today..my husband just gone off walking with his friend..went golfing yesterday..will be golfing tomorrow..I just feel as if I’ve been written off!!

I’ve put my horse out to grass for a bit as I’m in pain if I ride..guilty if I don’t

A woman who used to live next door to me years ago heard about my diagnosis and contacted me the other day and we arranged to meet for coffee today..I’ve cancelled it..just don’t want to go over it all and her asking me stuff..I know you shouldn’t isolate yourself but on the other hand I’d rather be by myself or with people who actually care about me

I’m afraid I’m not coping too well recently but hoping my iron infusion will perk me up

I’m going to make myself do some yoga stretches then maybe go for a little walk

I’m having a rant..I should be boosting your morale not moaning about me!!..sorry

I’ve just started a book called ‘the cancer whisperer’ by Sophie Sabbage..I like it..she’s not bossy telling you to do certain things..just writes well and I could identify with her..have read a few books and this is the best..all the others I felt were out to make money out of us

Barb XX

Toomanyquestions profile image
Toomanyquestions in reply toBarbteeth

Please don’t worry it’s good to hear you feel the same as me. I’m not up to social engagements either. I can’t even manage to interact with my children in a normal way. Just been on the phone to my nurse who’s organising some mind support X

Barbteeth profile image
Barbteeth in reply toToomanyquestions

Oh I hope that’ll help you

I did see a therapist for about 4 sessions but it wasn’t for me I’m afraid...I need to be active and mixing with my horsey chums but so tired and not motivated..it’s easier dossing about reading but I know it’s not good for me mentally

I’m going for a little walk just to get a newspaper and some fresh air

Hope you perk up soon

Love Barb

Xx

Toomanyquestions profile image
Toomanyquestions in reply toBarbteeth

I know I just sit in bed on my phone making myself scared. It’s really stupid. X

Have-faith profile image
Have-faith in reply toBarbteeth

Morning Barb! It is ok to feel a bit blah and cancel the coffee date. Rest up if you can. Enjoy reading your book. Thanks for mentioning it. I have not heard of this title and will look into it.

Hope your spirits are higher since you wrote your post.

Pisitive vibes are coming to you and the gals on this site.

Faith

Barbteeth profile image
Barbteeth in reply toHave-faith

Hi Faith

You’re so kind..the ladies on here are brilliant and it’s good to know I’m not alone

I’ve let my appearance go a bit and I have a partners meeting tomorrow so I’m going to sort my hair out as roots are showing!!! I always put lipstick on though even if I’m just in the house..peculiar!!

All the best

Barb xx

Francesca10 profile image
Francesca10 in reply toBarbteeth

🙏🏻🙏🏻🙏🏻To lift your spirits.gentle hugs your way💕

Frances

Barbteeth profile image
Barbteeth in reply toFrancesca10

Thank you Frances

Barb xx

mariootsi profile image
mariootsi in reply toBarbteeth

Barb

Don't feel bad. Do what you need to do. I feel the same way about social engagements and you are not ranting. We need to share our feelings here! It is a safe place with women who totally understand this mbc rollercoaster!

Hopefully you will feel better very soon. The iron will certainly help as will your change in dose!

Barbteeth profile image
Barbteeth in reply tomariootsi

Hi

I’m just feeling washed out and it seems everyone is having fun and I’m being left out..having a wallow!!..got my bunny rabbit out and he’s hopping round the lounge..makes me smile..sometimes it’s the little simple things..it’s always animals with me

All the best

Barb xx

mariootsi profile image
mariootsi in reply toBarbteeth

Barb

It is the simple things! How cute having a bunny hoping around. That would bring a smile! Enjoy!

Godbeforme profile image
Godbeforme in reply tomariootsi

that song I posted helps too coz it shows many different people smiling and just something about seeing it makes you smile too!

mariootsi profile image
mariootsi in reply toGodbeforme

Thank you!

mariootsi profile image
mariootsi in reply toToomanyquestions

Don't ever feel bad about posting your thoughts either positive or negative!!!!

Toomanyquestions profile image
Toomanyquestions in reply tomariootsi

Did you go through a depression at the beginning? X

mariootsi profile image
mariootsi in reply toToomanyquestions

I'm still going through depression! I'm still in shock over this dx.

I'm just trying to take it one day at a time and praying, going to meditation classes, taking xanax for panick attacks and getting ready to start effexor for my depression.

I f I didn't have this site I don't know how I would ever cope!

Toomanyquestions profile image
Toomanyquestions in reply tomariootsi

Yes same here, I’m in a state today x

Francesca10 profile image
Francesca10 in reply toToomanyquestions

Depression is normal for us. Living with this beast mbc is a rollercoaster ride emotionally and mentally. Physically can mess us up big time. One day at a time, sometimes one minute at a time. There are good days and bad days with this. I don’t believe anything we go through is negative/vs positive. There are just many feelings and states of mind while dealing with this. We all do the best we can with it.

Thank God we have each other and the posts💕💕

Love

Frances

Toomanyquestions profile image
Toomanyquestions in reply toFrancesca10

Thank you. I’ve got to go to parents evening in 15 mins. Never thought I’d be having to do these things in such a bad mental state. X

Francesca10 profile image
Francesca10 in reply toToomanyquestions

Takes time and I still have bad mental days😘I take lexapro at 40mg- known to have very few side effects and I haven’t had any. I was at 10-20 mg then mbc came along so now it’s 40.

We can do amazing things for our children. You will also💕💕

Godbeforme profile image
Godbeforme in reply toBarbteeth

Did I ever tell you that I learned that pain pills themselves can cause pain? My brother told me that first, he had been in a wreck and injured his back. Then when I got off of them alot of the pain went away. I know we're all different but I just had to share my experience with you. Since I quit the pain pills, I take aspirin and Tylenol alternately, and at night sometimes I take a Tylenol pm with a regular tylenol. When I broke my leg, they were giving me morphine and fentanyl shots non-stop, and I think that's why when I came home after 7 days of that, the pain medicine was only working for 3 hours when it was supposed to be taken every six, so I had to change something or start chugging pills, and like you said, they have their own side effects and hurt our digestion. Hope the iron infusion has you feeling a bit stronger by now. God bless you and heal us all in Jesus name, amen! God does love us and we, with Him beside us, have a beast to slay; some never get the chance to fight for their life, they are just GONE instantly; glass half full ... ME! <3 The bible says in Eph. 6:13 So put on God's armor now! Then when the evil day comes, you will be able to resist the enemy's attacks; and after fighting to the end, you will still hold your ground.

Barbteeth profile image
Barbteeth in reply toGodbeforme

Hi there

There’s a lot of truth in what you say about pain meds..trials with patients using one group on pain meds the other on placebo..pain reduced in both groups..even after the placebo group were told it was a placebo they still wanted to take the pills because they worked!!.. power of the mind

I’m not religious really though I was brought up Roman Catholic and convent educated and some of it will always remain with me but I also have a medical degree (dental) and the scientist in me questions everything

Thank you for your kind text

Barb XX

Godbeforme profile image
Godbeforme in reply toBarbteeth

The power of the mind is an awesome but kind of scary thing at the same time! My hubby and family from Southampton, England are all Roman Catholic but he now goes to church with me, Methodist at present, I like going to different ones on ocasion. What those nuns put you all through! I would be turned off too! RCPTSD! let me know if you get it! God is big enough for all our questions! You can bet I was hollering WHY GOD! <3 Oh, back to the pain pill phenomenon ... after 7 days, no pain pills, I decided on the 8th night that I could have just ONE to cure my aches and let me sleep well, emphasis on sleep, because since the letrozole it's been scarce. Well, I did sleep well but for the next TWO days I was an emotional mess, crying at the drop of a hat and in a miserable mood. So that's when I knew, something had changed in the old bean! Once you develop a tolerance to it, does it ever go away, where you can take a pain pill like a normal person on occasion without going through some sort of withdrawal? not expecting you to have the answer but you've done a lot of homework, I know, and I'm at that age where I can read a lot but retention is the problem! laters ... oh by the way, I'm in a funk a lot of the time, not all roses over here at all! And I haven't even started the ibrance yet so I kind of feel unqualified to even talk about any of it yet ....

Barbteeth profile image
Barbteeth in reply toGodbeforme

Hi

Yes I get it!!

Once a Catholic etc etc

I messed about with zomorph slow release last week and ok the pain was less but I decided to take a quick release oxycodone before I got on my horse on Sunday..big mistake..felt so I’ll i thought it was the anaemia but now thinking about it..was the pills..luckily I didn’t pass out when on board as that could have been a bad accident ..I suspect my BP dropped

I’m just going to take paracetamol and ibuprofen and if necessary top up with an oxycodone if doing something strenuous

Seeing my GP Monday so will ask her advice..whole things a nightmare ..it’s odd that you noticed such a reaction from just one pill..was it codeine?

All the best

Barb xx

Godbeforme profile image
Godbeforme in reply toBarbteeth

it was hydrocodone/acetominophen 7.5/300, which is tylenol/paracetamol by the way. I read that ibuprofen is bad for you so I only take tylenol and aspirin. have you read that about ibuprofen? yes, this is a nightmare, I agree. I have always been funny about medicine because most of it makes me sick or I can only take half ... WAY before cancer entered the picture. I have a very sensitive system. I'm so glad you didn't fall off the horse, that would have been bad. I am scared of falling now, which I never was before, and off a horse is just scary to think about with all the moving parts. I never will forget, we rented horses one time at the beach and the horse was puffed up while the saddle was put on, so when I jumped up in the saddle, he let out his breath and around I went with the saddle and onto the ground. He stepped on my hand and NOTHING broke! still amazed at that after all these years as I was only 17! thank goodness for the thick sand, saved my hand!

Barbteeth profile image
Barbteeth in reply toGodbeforme

Yes always check your girth before mounting!!

I know ibuprofen is harmful to stomach lining but mines like cast iron and I try to take them with food or milk..I’ve taken them for years

Off to the cinema now

Barb XX

Arkait profile image
Arkait in reply toGodbeforme

You seemed to imply Letrozol affected your sleep negatively

Is that true, or did I misunderstand?? (I take Letrozole and

sometimes have sleep problem)

Godbeforme profile image
Godbeforme in reply toArkait

yes, I had minor sleep problems before but it definitely made it worse where I could hardly sleep. I tried taking it just M,W,F and have slept better; but the unknown result of not taking the correct dose outweighs my worry about sleep and anything else, so I ditched that idea and taking every day like prescribed. God bless you and heal us all in Jesus name, amen! <3

Toomanyquestions profile image
Toomanyquestions in reply toBarbteeth

Okay I think we can say increasing to 20mg is going to have the same effect. I’ve been a total loony today. Now I have the dilemma of whether to keep going with it. It’s scary isn’t it?

Barbteeth profile image
Barbteeth in reply toToomanyquestions

It’s a bit of a dilemma..I’m going to talk to my doctor on Monday re the reemergence of side effects with dose increase..if that’s true then I’m not sure what to do.. nightmare

Barb xx

Toomanyquestions profile image
Toomanyquestions in reply toBarbteeth

I was just feeling some benefits to being on it so I do think increasing it will help so I almost think I can’t go back now. I will let you know how I am x

Barbteeth profile image
Barbteeth in reply toToomanyquestions

I know what you mean

Barb xx

Toomanyquestions profile image
Toomanyquestions in reply toBarbteeth

Please tell me what your doctor says as mine is rubbish. She suggested increasing it and didn’t say anything to me about side effects x

Toomanyquestions profile image
Toomanyquestions in reply toBarbteeth

Day 3 - extremely wobbly, I think I’m more depressed than before. I know it will pass but it’s very hard! How are you today? X

Barbteeth profile image
Barbteeth in reply toToomanyquestions

Oh sorry to hear that

I just feel nauseous..acupuncture lady put those little seeds on my wrists and I press them and it helps a bit

Went to yoga this morning and had to stop for about 5 mins as felt quite weak..carried on though..might not be the citalopram as I was fine last week did some walking

Nightmare..hope you improve quickly

Barb xx

Toomanyquestions profile image
Toomanyquestions in reply toBarbteeth

It’s great that you can do yoga. I walked up a hill for the first time since my operations. I was thinking of going back to my yoga class but I will be so weak compared to how I was and people will ask where I’ve been etc X

Barbteeth profile image
Barbteeth in reply toToomanyquestions

If they ask just say you’ve had a break from yoga...they don’t need to know anything unless you tell them..my advice is don’t

Most people..unless close friends..aren’t that bothered..it’s us that are!!!.. because we know what’s happened ..they don’t

You could maybe have a few private lessons?.. or start doing some short sessions at home first?

Barb xx

Toomanyquestions profile image
Toomanyquestions in reply toBarbteeth

Hi Barb just to let you know day 4 of 20mg and I feel improvement!!! X

Toomanyquestions profile image
Toomanyquestions in reply toBarbteeth

Spoke too soon x

Barbteeth profile image
Barbteeth in reply toToomanyquestions

Is it the nausea?.. I found that the worst symptom

Stick with it though..I know you know that

Barb XX

Toomanyquestions profile image
Toomanyquestions in reply toBarbteeth

I’m having really negative thoughts X

Toomanyquestions profile image
Toomanyquestions in reply toBarbteeth

Did you have them the first time? I feel more depressed than ever x

Godbeforme profile image
Godbeforme in reply toBarbteeth

I had to take anti depressants in my 40's with my peri-menopause ... I couldn't stand the side effects.

Benoahmom profile image
Benoahmom in reply toBarbteeth

I was reduced after the first round, they lowered my dose but don’t want me to take it until my white blood count goes up. It’s been 2 weeks now. I hate that I’ve been dropped from 125 to 100 and am on-hold pending a positive blood test.

Barbteeth profile image
Barbteeth in reply toBenoahmom

Not many ladies tolerate the higher dose..the 100 mg works just as well according to studies..why give us the high dose baffles me

Barb xx

Hi!

First of all, I just wanted to say that your picture is beautiful! I would guess you are 50 from your picture, not 68.

I have sought advice from pharmacists since my diagnosis, but I would suggest you talk to your oncologist first. I would not want to make any decisions about reducing the dose of your medication without discussing things with your oncologist and seeing the result of your scans. That is so important. If they show a reduction of tumours and/or stability then you might want to stay with the current dose.

Take care,

Sophie x

Thrifty51 profile image
Thrifty51 in reply to

Thanks for the sweet comments on the pic. It is a year old but the only one on my computer and I just had a birthday. I do take after my sweet late mom who always looked younger than she was.

I am definitely asking for scans before changes to dosage.

in reply toThrifty51

It's great when you have good genes like that! I wish you all the best!

Sophie x

SoCalLady profile image
SoCalLady

Thank you for the reminder about Kisqali and blood clots. I am on my 23rd cycle with Kisqali & Letrozole with minimum side effects, but now my markers are up and Ong wants to switch me to Faslodex, which would knock me out of my clinical trial and cost me $3,200/mo. I see my Onc on April 10 and will ask about the reduced dosage for another opinion. By the way my Kisqali/Letrozole never reduced my bone mets, my scans just showed I was stable. Are you also taking Zometa injections or similar for bone strength? Lastly, I'm surprised your Pharmacist rather than your Ong was calling the shots regarding reducing the dosage.

Thrifty51 profile image
Thrifty51

Thank you for your recommendations. I will see my oncologist April 1 after my week off of Kisqali. There will be no changes until then and of course new blood work. I did have to take two weeks between 1st round and second one to allow WBC and RBC to recover. I don't feel that I am as fatigued as I was then but still dragging.

Thanks also for the kind comments on my pic.

Thrifty51 profile image
Thrifty51

Wow. I am impressed with 23 cycles on Kisqali. Although we would all like reduced bone mets, I'll certainly take no progression for 23 months as a success (I think). I'm sorry as I did not mean to give the impression that the pharmacist was making the decision. She and I will talk to my onc April 1 about it. The pharmacist brought it up on the phone for the first time yesterday as she calls a lot to check on me and any side effects from the Kasqali. I think she was mentally preparing me (maybe).

My old doc gave me Zometa infusions but this new one that I've had since the middle of January recommended Xgeva shots. She is all about keeping all appointments down to one day per month and having everything done in one trip. At my second appointment with her I had blood work, saw the PA, saw the doc, talked to the pharmacist, got an ekg and then had my Xgeva shot and was in and out within two hours. I was impressed. My old doc would leave me sitting in the waiting room for two hours.

PLASEM profile image
PLASEM

Probably wants to reduce because of the fever how high was the fever and if the fever was every day because if you have fever every day that isvsign of infection probably your white blood cells are very low ask about it

Godbeforme profile image
Godbeforme

hello, Thrifty! So sorry you have to join us here but so thankful we have this place to come and share, vent, cry ... and no one points fingers but I see some of the sweetest people on here helping each other. I know many have helped me get through this. How horrible to have a hip break while you're just walking! I will pray for you, that things will get better, and I, like you, would want a scan before the medicine dose was lowered. I had a 4.5 tumor in rt. breast in 2013 and had a lumpectomy with 8 lymph nodes removed and 30 rads; had to stop short of 32 due to severe burns. I never looked back or even thought of cancer until a few months ago, when being x-rayed for a shoulder injury the doc said my bones didn't look right. I am taking letrozole and have 2nd appt. with the onc. next month. i shared this with another lady, and now I want you to have it too. I feel blessed that God let me know about this in time to save my life. Many people are just GONE without a chance to fight! So put on God's armor now! Then when the evil day comes, you will be able to resist the enemy's attacks; and after fighting to the end, you will still hold your ground. eph. six 13 God bless you and heal us all in Jesus name, amen! <3

mariootsi profile image
mariootsi

So sorry to hear about your situation! But I think lowering dose is scary but from everything on this site, oncs tell us a lower dose is just as effective with less side effects. You will probably feel better and have a better quality of life.

Prayers to you for a quick recovery!

So happy you found a new onc. It is so reassuring to have faith in them.

And, you are not ranting. We are all here to listen and be here for each other.

Eliactida1955 profile image
Eliactida1955

Hang in there-this is a great group of ladies here . This site constantly reassured me and I read and learn from everyone. I am with stage 4 that has metastasized to the left femur but after scan a lot has stabilized or disappeared with God and Ibrance, Letrozole. I heard that sometimes the cancer is discovered with a fall happens or the bones break. I hope your not in a lot of pain . I am on my 4th cycle of Ibrance the end of it but so far I am not in any pain except for this heel spur-Achilles tendinitis . Living day by day as all of us do-Thank God I am alive.❤️

Barbteeth profile image
Barbteeth

Hi Sandra

That’s reassuring re the dose increase of citalopram as I do feel I need the 20 mg now..also thanks for laxative info..I feel like I have my own personal physician!!!

Going to the cinema in a bit to see ‘Us’..apparently very scary..I love horror movies (as long as they’re not stupid stuff but psychological) so that will take my mind off things..I’m a movie buff and have a massive collection of films especially film noir from the 1940s

Barb xx

Arkait profile image
Arkait in reply toBarbteeth

Hi Barb, Sorry you are in pain. I think your entire mood must hinge on

resolving that "distraction". I really recommend THC/CBD try, if you

haven't yet. My prayers that you get physucal relief soon.

Mary in Maine

Barbteeth profile image
Barbteeth in reply toArkait

Hi there

I’m in UK so can only Get CBD oil..I’ve started taking capsules this week..perhaps they take time to show any effects

Barb xx

Arkait profile image
Arkait in reply toBarbteeth

Dear Barb, I was in London for six months in 1967, living the hippy

life. There was easy access to street pot. If nothing else, perhaps

you could cop some of that, an try? Im just saying, think you should

somehow discover if it would work for you, and if so, next problem

would be to obtain.

Jackdennis5 profile image
Jackdennis5 in reply toBarbteeth

Hi I have been looking into cbd myself and would like to try it but I was watching something on YouTube and it was saying how it could help but to be careful if you were on ibrance which I am as in can contraindications with it. I wish there was someone to talk to about it but my onc is only interested in the drugs . When I was first diagnosed I mentioned homeopathy which I have used for 30 years as I am not good with conventional medicines .The answer was an adamant no .Have you any more info you could share .Its just a case of trying to find a little feeling of normality in our lives I don’t want to climb Mount Everest .I would just like to vacuum my house or clean my windows without feeling wiped out.Eh! I’m sorry if I’ve ranted ,forgive me .

Barbteeth profile image
Barbteeth in reply toJackdennis5

As you may have read my recent post about my visit to the COC clinic ?

Well the consultant I saw actually recommended CBD oil....I would be inclined to take the advice from him rather than something on YouTube

My opinion

Barb xx

Jackdennis5 profile image
Jackdennis5 in reply toBarbteeth

Thanks so much it’s just scary trying to sort the information out i wish I could talk to my onc about it as it’s a mine field. Thanks again xxx

Barbteeth profile image
Barbteeth in reply toJackdennis5

In the Ibrance leaflet it states in the drug interactions section to avoid grapefruit pomegranate and St. John’s wort

There are no others mentioned...if there were any other contraindications then they would be in there

Barb xx

Jackdennis5 profile image
Jackdennis5 in reply toBarbteeth

Yes I knew about them but this nurse Karen on you tube was promoting the cbd oil and she said to find the dosage that suited you etc and then right at the end she said of cause it isn’t the same for targeted drugs and she mentioned ibrance something to do with the receptor pathways that the ibrance use .Too much for my tiny brain just made me more confused, I think your onc obviously will know all about that. It’s good to find someone I can talk to about .Thanks again from a little old confused woman .xxxx

Barbteeth profile image
Barbteeth

Hi

I’m just reading another biography about VivienLeigh...she was so beautiful but suffered so much with her manic depression ..yes Gone with the Wind is one of my all time favourites

Did you know that Clark Gable had full dentures?... ruins Rhett doesn’t it?..I wish I didn’t know that lol

Barb xx

Sunnydaz profile image
Sunnydaz

Hi Thrifty,

It just amazes me that this can come back after so long. Maybe you can wait another month. It has to be so difficult tell the difference between the meds and your hip. I hope your feeling better soon.

I do meditation on YouTube for anxiety. Today I have Reiki, my first time!

My doctor told me yesterday that my job is to take good care of myself. I’m going to take notes and see if all of the meditations help with my blood count. ;)

Toomanyquestions profile image
Toomanyquestions

Hi Sandra, you are so kind to be concerned. Yes in addition to the other meds I take Citalopram, Diazepam and Zopiclone for sleep. That is quite a cocktail. They think I have PTSD from my hospital experience (I broke my neck and also had rods in both femurs). I don’t like taking so many meds but I’m seriously depressed, I think it was triggered by the aesthetic, coming off morphine and shock of diagnosis X

NCDS profile image
NCDS

I did Femera 10 years ago (1st go round) killed my bones, hurt like hell, changed to Arimidex, then to aromasin. Good luck

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