hello 🌺 happy woman's day 🎀💕
Today I am finishing the 4th cycle of Ibrance. I cried for everything. I have the lageimas that come to me alone. Normally I am very positive and active But today everything they said was crying Until I told my husband the details of my tearful day at work I started to cry 😳 Happy evening. I will try to see a comic movie to try not to continue crying. 🌺💕
God love you, it sure does stink. I agree that you should explore other help, eg, massage therapy, antidepressant, meditation (I found some good free apps on my smartphone) and having a talk therapy counselor help sort out how you feel. Maybe a counselor can help you to find coping tools that help you. fyi I take CBD oil each night which seems to smooth out the lows. But I completely get it. I feel sorry for myself and what will be next I try to appreciate that these meds are there. Hang in there.
Dear Maludagua
Some days it goes like that. Ibrance can be exhausting, and this diagnosis is overwhelming. Even many years in I have private, tearful moments. Most recently the past few days! I am glad you can share with your husband. Let him take care of you, fix dinner and pick up the slack, while you rest and find your way back to feeling more positive. This journey requires more than I thought I had to give. We have to give ourselves time and space when we need it. Nothing wrong with taking a mental health day from work if you are feeling overwhelmed. Hope you are feeling better soon. 💕
I know this can be so overwhelming. Sometimes it is ok to have a good cry.
I was on Ibrance for almost two years and found it to be one of the best as far as side effects go.
Hope you have a better day tomorrow.
Barbara
Hi there
I know how you feel..last week I cried on and off for two days because of the situation and the pain in my spine
Try and get outside for a walk in the fresh air..I forced myself to do that yesterday and today I feel more positive
Easier said than done though
I’ve started antidepressants 3 weeks ago as I wasn’t coping..waiting for them to start working!
All the best to you
Barb xx
Hi Barb, are you taking Citalopram? My first week has been terrible. My doctor has prescribed diazepam which is making the side effects more bearable. How are you doing now? X
Yes Citalopram 10 mg
I’m on week 4 and have felt terrible..almost stopped them several times
I’m tired.,nauseous...have back pain (worse than usual) and very very weepy
I’m told that symptoms will improve so persevering now I’ve got this far
Barb xx
That’s interesting as I have been exhausted. I wouldn’t have managed without the Valium. I’m about a week and a half behind you. Do you find you improve through the day? I take mine in the evening and seem to wake up in a bit of a state. Do you take anti sickness for your Ibrance? I find metocopromide really works without side effects X
Hi
I take my citalopram in the morning and struggle to eat as I feel sick..I was given some anti sickness pills ages ago when started Ibrance ..however that doesn’t make me feel nauseous..I checked the leaflet and it says not to take them with citalopram..(I read it after taking the pill!!)
I think the side effects are slowly improving..I don’t want to go through that again..hideous
Interesting that you take yours at night though..were you told to do that?..I read that taking them at night can disturb your sleep..everybody is different though
Barb xx
Oh I should check what my anti sickness says then. I’m not sleeping anyway due to Zolodex putting me in to menopause. Well I think it’s that plus anxiety I guess. I had been using sleeping pills but I wake up at 3.30 then 5.30 with or without. I got some CBD for getting to sleep. I do worry about taking this concoction. I have to say the Valium has been the best thing. I know it’s addictive so I’m just taking one a day if a panic attack starts. Which is most mornings since my operations. I wouldn’t have stuck at these Citalopram without it as they sent me even more loopy. Weirdly by the evening I’m fine. I would see if you can get prescribed something to help you get through this initial period Xx
Well I’ve been having some acupuncture for back pain and when I mentioned the nausea she stuck little adhesive poppyseeds on the inside of my wrists (sounds mad I know!!) told me to press on these points if I feel nauseous..oddly it seems to work or it’s just a coincidence and I would have felt better without them!! ..probably never know for sure
Barb xx
Me again!!
She also needled my ankles to stop night sweating and I’ve definitely had less of those thank goodness
Barb xx
So sorry you are going through this. I just think sad days are just part of this dx! I also feel like the Ibrance causes more depression. Think about talking to your onc about an antidepressant. I'm going to do that myself on Tuesday when I get my scan results and my faslodex shots! I wish you better days! Hang in there. It seems to come and go!! Love and hugs, Marianne
Hi
Wishing you good scan results today..getting mine tomorrow ugh
Barb xx
Barb,
Hope you are feeling better. Got my scan results today- everything stable. Staying with Ibrance and Faslodex. 3weeks on Ibrance, 2 weeks off because of my low platelets. Go back March 26th for bloodwork and shots! I wish you well tomorrow! So stressful! Let me kno w how you make out! Love and hugs, Marianne I also asked the onc for effexor for depression and hot flashes. She perscribed it for me. Starting at a low dose to see if it helps with my depression.
Oh so pleased for you..stable is good!!
Good luck with the antidepressants
Barb xx
Hi Maludagui,
I'm sorry to hear about how you have been feeling. I'm sure we can all relate to how you are feeling. It is hard living with this diagnosis. I hope you are feeling better today.
Take care,
Sophie x
Thank you, Sandra. It was like a convergence of physical and emotional stuff that wound up in a flu like illness that took me out for 2 days. I am going to use this as an opportunity to reset my clock and get back into positive thinking, better diet, straightening up the house...you’d think after good scan reports I’d be clicking my heels together, but while I was relieved, things just kind of unraveled. This illness is like the worst part time job possible. I suppose the fact it is a part time job makes me fortunate. As I said to my shrink, maybe I should just stop complaining and count my blessings. And I will. Maybe tomorrow!😱
Your report of good scan results and having a couple of bad days made some thoughts that I have been having click into clarity. I am usually very positive but I’ve had a couple of weeks feeling more exhausted than usual. I’m a year into Ibrance with very good scans and my last bloodwork was excellent but instead my mind was going to that place that says, is this the best that you will get? It’s a combo of exhaustion and winter (Western Oregon is still having snow, very unusual for us) and I’m sure I need to get more sleep and keep readjusting my mindset, but some days it’s hard. Hang in there! We do have lots to be thankful for and I for one am thankful for your presence on this forum. Your positive, calm, and accepting comments have been very helpful to me and I’m sure to many others. Hugs, Elaine
You are so right. It’s been dark, cold, stresses add up. If you don’t feel well physically, it drags your spirit down. If you are under mental stress or feeling down, it gets to you physically. It was a cluster you know what. I definitely have to be intentional about creating better habits. They don’t just show up because you want them. Thanks for your kind words. I think life basics are just multiplied when you are dealing with something like mbc. Inhale, exhale, keep going!
With this disease, we hold onto our mental and physical stability by our fingernails! Any extra stress can be the thing that sends us over the edge. More hugs to help you get back to “normal” as we know it! Elaine
I feel the exact same way. This past weekend was rough. Especially yesterday, just blew off my healthy eating, healthy thinking everything. Today is a new day, my granddaughters will be here tomorrow from Texas for a few days, haven't seen them in over a year. Scan this week so nervous about that. We are also telling my girls my new diagnosis not sure how to tell them. I am their only grand parent left. Going to be emotional.
Have a blessed day
Robin🌼
When I was younger I would cry over anything while on my period. I don’t have those anymore but seem to cry like that now. I cried my mascara off watching the movie, Instant Family.
It’s a good release.
Comedy movies help me too. I am sorry that you had a hard day, this will pass.
What is lageimas?
Tears
Aww hugs - if it helps any No matter how strong a person is or how great their support group is, we all go through days like this.
So sorry that you are feelin this way-I felt that way maybe first two months -now tired sometimes and the energy has never come back. I have the hot/cold flashes mostly at night but I did switch the Ibrance and take it at night now where the letrozole I take in the am. Try to be upbeat and remember winds change so it should be blowing your way soon. You are strong working through it all -try to roll the stress off.❤️🙏
Thank you.
In think that when you are working and tired, it's hard to stay positive! This ugly disease can really get to you! I feel very fortunate that I feel good on Ibrance with tiredness as the main side effect and some occasional diarrhea. I do take naps in order to maintain my ability to go forward. I feel lucky to be able to have so much support from many friends and family. I lost my husband 13 years ago but have a significant other that is very supportive. I relie on my faith and know that God has a plan for all of sudden! I live everyday to the fullest and try not to think too far ahead. I think if I was feeling sick everyday it would make me depressed also, but I do take Prozac and that keeps me focused and centered. Trust and BELIEVE and talk it out with a counselor or a good friend. That helps to get you the perspective you need! Have something to look forward to that makes you feel good! I'm presently visiting good friends in Florida and the sunshine and water sure makes a big difference! God bless you and give you the strength to go forward with lots of positive thoughts! Have a great day! Kathy
This is NOT easy. And Ibrance knocks the crap out of you so then we are not tolerant of much and easily more emotional than we would like. Make sure you are drinking a gallon of water daily to help with energy levels and look into tapping to work through emotions which we struggle with. I know all of our prayers are with you.
Oh honey, I know exactly how you feel. There are more days than not when all I do is cry. Sometimes I can’t even get out of bed. I’ve always suffered from Major Depression Disorder, but this is a different thing. No one knows what to do about it. I am thinking and praying that you will be able to at least find some moments of peace. ❤️❤️❤️
Tears are good. Sometimes feel I need to cry and can’t. We all here know how up n down this journey gets. I am on ibrance also- had faslodex n xygeva Friday. Was so sore and wiped out. I am on anti- depressants and sleep meds; slept well that night and was with my baby grandson all day yesterday. I am looking for a therapist now to help deal with this. I do not want to give more time thinking of dying as I do. I hate it; it deprives me of being fully here. Yes there are times it is on the back burner; there are times I am wiped out. I can roll with that. What I am done with is those mental trips to lonely dark spaces. I need help not to go there. My tumor markers go up every month: my last pet showed more Mets near the spine. Hence the ibrance. I know as we all do what this disease can do; I don’t want to live there in what if?! It is where it is now; I hate all the unknowns but somehow I need to find acceptance and lasting peace with this.
Cancer Sucks !$**%$#@#%**%%&!@#!
I think most of us have gone through the crying spells and I know I still do every once in awhile. I just try and go with them and then try and refocus and count my blessings. Laughter truly is the best medicine.
Kim
Hi Sandra
Saw surgeon Saturday..there’s not much he can do so he’s going to inject some hydrocortisone into facet joints around fracture..has told me some exercises to strengthen my back muscles..I guess they’re weak due to the now curvature of my spine..difficult getting up enthusiasm when everything hurts
Thanks for asking
Hope you’re doing ok
Barb xx
Well I was the same..a bit worried about making fracture worse or getting more fractures..especially arching my back but consultant said I can do that and said it was ok to go to my yoga classes..so I went today and it was uncomfortable..if I sit around though my lower back hurts..what a life!!
Can’t you have your hip replaced or strengthened?.. then you wouldn’t have to worry about exercising
What dog do you have?.. I’ve never had a dog but love them..have 2 cats 2 horses and a bunny..enough to keep me happy
Barb xx
Wow a long term living plan..that must be so reassuring..I don’t dare ask mine that question but from what I’ve gleaned on here..bone mets can be controlled for some time..I do hope so although when I’m in my dark moods and in pain I think what’s the point!!!
Hence the antidepressants
Barb xx
Hi Sandra
You’re so lovely to me..getting cortisone shots next Monday..seeing oncologist tomorrow to review scan so scared of that...I had acupuncture this morning..it’s helped with the night sweating but not the pain..met up with a chum for coffee after but I don’t think I was much company..she doesn’t care as she understands!!..glad you like your oncologist..mines really kind but I sometimes think she keeps things from me..ie the tumour markers as she knows I obsess over those
Barb xx
Thanks for your good wishes
A car is the last thing on my mind tbh..I’m a misery at the moment I’m afraid
I’ll let you know how I get on tomorrow
Barb xx
Ibrance and supplements
Family Christmas dinner
Lobular progression to stomach and colon
CT exam revealed endometrium thickness and biopsy confirmed the endometrium cancer. I have MBC
