Ibrance, watery eyes and how other Stage 4 Breast Cancer, HR+ PR+ HER2- are doing 5 1/2 years after diagnosis.

[Mini9045]

Hi,

I am Ann. I was, suprisingly, diagnosed with Metastatic Breast Cancer 5 1/2 years ago. I was 57 years old. HR+ PR+ Her 2-. I have a tumor in my left breast and numerous bone mets.

The decision was to not remove the tumor. I had Chemo, Radiation and took that little tiny miracle pill Letrozole and Xgeva shots.

The radiologist said “Oh Sh!t” when she did my biopsy. She probably should not have said that but I do like knowing the truth. I was totally shocked. I had no symtoms except my back was getting really sore at work, even though I only sat. I have had a bad back since 8th grade.

The Letrozole worked great until about 5 mos ago. I showed some new mets in my spine. I had radiation treatments and I am now on Ibrance, Faslodex and XGeva.

Ibrance was not available when I was diagnosed.

I have been on Ibrance for 4 or 5 months. I do get really tired, especially lately. My eyes are watering. I have read others on Ibrance have watery eyes too.

I have not lost any hair🤗. I lost all my hair when I had .chemo 5 years ago.

My biggest complaint all through this has been my hips. I need two new hips but I not up for the rehab.

I was wondering how other people, who have what I have are doing 5 years in. Are you able to do all your normal activities. I am not.

Best to you all!

Ann

[diamags]

Hi Mini. I'm going for my scans next week. That will be the 5 year mark. I've been blessed to be on the old timey Fadlodex, Arimidex and Xgeva protocol this whole time with workable side effects -- sore joints, etc.

[marybv]

Hi Mini,

I am the Breast Cancer Helpline Manager at SHARE Cancer Support and the Volunteer who will be on the Helpline this Saturday, Sept. 8th, from 1:30 pm - 5:30 pm ET, Ellen, takes Ibrance. Perhaps calling her would be helpful. The Helpline phone number is 1-844-ASK-SHARE (1-844-275-7427).

Hope you are able to find some relief soon!

[beleive]

I was diagnosed in 2012 had radiation and chemo 2014 it matadalize I was on ibrance and letrosaw.....last check up showed it's not working any more.. I've started shots three weeks ago...ouch!!!will know Friday if it's working.....if your tired rest.....save engery for special occasions

I give God the Glory!