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Faslodex alone?

Does anyone know if they can use Faslodex alone for mbc? The reason I ask is because I’m having a hard time with the class of drugs Ibrance and Verzenio. I want some quality of life at this point. I’m 63 and can’t even enjoy a dinner with my husband due to nausea and weakness. Any suggestions? I go back to Dr on the 11th. Thanks for listening to me complaining about everything.

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Claire, I'm so sorry you had to cancel your vacation. I wish you would have had better luck on the Verzenio. Is there a lower dose for the Verzenio? I've been on nothing but letrozole for a month now. The 100mg brought my neutrophils down to 4.75 after a month. I needed my neutrophils levels to come up so that I could have my surgical biopsy. Had the procedure done last Wednesday. They removed three wedge shape sections from my left lung and got three plus nodes. Haven't received results yet. Even if I get to return to the ibrance I will probably be put on the 75 mg. Not sure they will do that though because of the mixed results on my CT scan. I have an appointment on the 11th with my oncologist to discuss new treatment plans. And I won't be surprised if chemo is part of that treatment. So I understand when you say you're feeling a little down I'm kind of in the same place. Maybe your doctor will let you try the 75mg ibrance. Good luck and let me know how you're doing.

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Thanks for that! I’m glad you finally got your biopsy done. I go on the 11th also, for more in-depth blood work. I’m thinking Verzenio has 50mg. I wish they would start lower dose and work up if needed. I have to take it twice daily. I understand it also can cause brain Mets due to it breaks blood barriers to brain, something else to worry about. I had no problems with 100 mg Ibrance just Neutrophils but he could have tried 75mg. I hear from him all the time I don’t look like a cancer pt, and he thinks I will go into NED. I know that’s positive and I love that but I would like some quality of life. I hate getting up due to feeling so sick and weak. I know I have cancer but I felt so much better before Verzenio. I did chemo for 6 months and felt better than this. Have you had chemo? I was expecting worse than it was. Very little nausea mostly dry skin. With Doxil it was only 1hr. and monthly so not to bad. I lost weight but I needed to. Please keep me posted on your new treatment, as I pray it will be easy as mine was. 💗

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I think you need the two drugs. The first starves the cells second one shrinks them. I know I saw a commercial for about her new one on tv, but forget the name. I will watch for it.

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Hi Clair19, I have been on faslodex for about six years now and nothing else. It is working great for me but I am a strange duck lol

Ask if you can try it alone for awhile and see what happens.

I think this is a game of trial and error most of the time kind of like let's try this and see if it works.

I wish you good luck and hope something will work better for your quality of life.

Best wishes

Becky

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Clair, I would listen closely to your oncologist, and if you don't trust what he says, get a second opinion. You're dealing with your life here and there are no do-overs. Go with those who study this and deal with it. But please, don't search the internet and make these important decisions with anecdotal evidence. We are all unique with different genetic make ups which react differently to these meds.

I wish you well on your appointment on the 11th.

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