Hello there. I've been part of this community for almost 3 years and have found it to be extremely helpful as I navigate this journey. Last year, I was made aware of a program by the Broad Institute (Harvard and MIT) and Dana Farber called The Metastatic Breast Cancer project. What they are doing is collecting genetic materials and our doctor's data, putting it into an extremely large data base in an effort to find new cures for breast cancer. This can all be done through the computer and mail. I am participating in this because it is one way that I can feel that I am helping myself and others by enabling some of the best minds and computers to make discoveries that can help us. I am posting this in case people are unaware of this easy way to make a difference. You can look it up at
mbcproject.org There you will find a better explanation as to what they're doing.