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That dar white blood cell count

SusieIM profile image
13 Replies

Hi all. This coming week I take another blood work. The nurse said if my blood white cell count goes down anymore, they will either reduce the dosage (its 125 Ibrance) or have me take a break from taking Ibrance. I am keeping my fingers crossed and saying a prayer, that it won't go down more.

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SusieIM profile image
SusieIM
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marianne88 profile image
marianne88

I read a lot about dropping to 100mg of ibrance and there is truly no difference

Partia profile image
Partia in reply tomarianne88

I went from 125 to 100 early on...going on 17th cycle Friday.

bankusboysmom profile image
bankusboysmom

Good Morning SusieIM, I went from 125 down to 100 almost immediately and have been there ever since -- 2-1/2 years. I'm doing well. I was so worried when I first went down to 100, but honestly I can't tell a difference...accept of course I have most of my energy back!

Epinto profile image
Epinto

Glad u r doing well. Two and a half years on ibrance and it is working is a very positive sign that this medication is promising as prevention for this horrible disease. I was wondering if anyone has been on it longer than that? I am on it for 16 months now along with faslodex.

Meadesmith profile image
Meadesmith in reply toEpinto

In my third year, ibrance and letrozole. Ned since October.

Epinto profile image
Epinto in reply toMeadesmith

That is great!!! Gd bless the people that developed this drug and may it continue to give us continued health for as long as possible.

SusieIM profile image
SusieIM

Thank you all for your input, it is encouraging to know. We are not alone in this.

marianne88 profile image
marianne88

Are you stable

I'm on cycle 8; am down to 75 mg with an automatic 2 weeks off due to low neutrophils and my recent scans show I'm stable. Ibrance is still doing the job. Praise God!

Hock15 profile image
Hock15

I’m going through the same thing. I just went through my first mo. And my counts are already down. I think some of it is because of mouth sores and could not eat right😕 Fingers crosses for us both.

Meadesmith profile image
Meadesmith in reply toHock15

Did you bump up your vit c and hydration for mouth sores. Also juicing and protien smoothies to get your nutrition when you're just not able to eat.

Hock15 profile image
Hock15

Hi I do the juicing but I dropped to 100 mg on my ibrance and that helped big time and I also started using Thieves oil from Forever Young and that really helps.

Epinto profile image
Epinto

What is thieves oil used for?

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