Faithful

[Kamibr2na]

Came across this site. Hope for encouraging words. Stage 4 breast and uterine cancer consumes me. Xeloda and faslidex shots seem to be holding me stable right now. 3 years since mestasis so I feel so fortunate I have more time. I want this fixed so badly.

[Kats3]

Hi K,

Am glad the Xeloda and Faslodex are helping you. Did you have other treatments before this? Where are your breast cancer mets? Mine are in the bones and I'm currently on Xeloda along with Zometa infusions to strengthen my bones.

If you're like the rest of us here, we're on medicines for as long as they're working and we don't have terrible side effects. Seems we're monitored pretty closely with tumor markers and or scans at various intervals of time.

Do you like your Oncologist or team of doctors who are caring for you? I had 2 that weren't a good fit for me and now have a great doctor!

Keep on top of things. Get copies of lab reports and scans. Ask plenty of questions. Hopefully you have someone who goes to your appointments and treatments with you. They can take notes on what is being said by your doctor. It helps.

Keep us posted with your progress. Wishing you well. Stay as positive as possible though there are days when it's tough to do that. Try to do things that will take your mind off the situation, like going for a walk, enjoying music or anything that you like.

I'm still trying to come to terms with my BC diagnosis and trying to work around my limitations. It takes patience. I'm saying my prayers every night!

Bye for now...... Kats3

[Kathyinmich]

There are a lot options out there. New research and new treatment are becoming available all the time. Stay positive and wishing you the best. We will survive. Hugs and prayers, Kathy

[Rhwright12]

Hi!

I have MBC with mets to the bones. However I do have a girlfriend that had breast and uterine cancer 11 years ago....She continues to be progression free!

I wish u all the best on this journey for many years to come...

-Heather

[missa13]

Hi Kamibr2na , hope you find the support you need here. Sending you lots of strength! <3

[daf10]

Happy that you have found our community. Sounds like you were given a double whammy Glad to hear that the Xeldoa is working for you A positive attitude can go a long way and it appears that you have one.

[Barb5]

Hi glad to hear you are doing well. I was exemastane for 3 1/2 years did great now it stopped working and mets to my spine started faslodex shots for a month or so but feeling awful too weak brain fog crying just awful so we are stopping treatment for a month to see if from meds. Can anyone let me know what side effects you may have had from faslodex shots?

[Kats3]

Hi Barb5,

I had 3 month's of Faslodex shots. They made me nauseous + had loss of appetite plus fatigue and just not feeling well. My tumor markers went up on Faslodex and I was switched to the chemo pill Xeloda. I'm doing much better on it with very few side effects. Tomorrow I see my Onc and will find out if my markers are stable and I can continue with the Xeloda. I sure hope so! If not, I think I'll be on Ibrance with or without Femara. Everyone reacts to different drugs in different ways. Maybe Faslodex is not for you. Time will tell.

Hope you feel better soon! Kats3

[Barb5 in reply to Kats3]

Thank you for your feedback I felt just like you did on faslodex except for loss of appetite but I never lose my appetite lol