Tamoxifen: Hello! I am 34yrs old and... - SHARE Breast Canc...

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Tamoxifen

shanikab1 profile image
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Hello! I am 34yrs old and was dx with Stage 1 HER2 triple positive breast cancer October 2018. I have done chemo and had a lumpectomy. I am getting a consultation regarding radiation but my oncologist put me on Tamoxifen. Can anyone give me some insight or opinion on what to expect? I am a little nervous and skeptical on taking it.

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shanikab1
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1stgradeteach profile image
1stgradeteach

I've been on it since Oct. 2018 and haven't had any issues from it. The only thing that I noticed was that my stool was slightly looser but wasn't a problem.

shanikab1 profile image
shanikab1 in reply to 1stgradeteach

Thank you so much for your input! I greatly appreciate it!

sharon1014 profile image
sharon1014

Hi there

I am 44 and In 2017 had invasive ductal carcinoma and had chemo, single mastectomy and radiation. I just had reconstruction surgery in January. I am on tamoxifen. I have been on it for about a year. I gained some weight but besides that, it hasn’t been a problem.

shanikab1 profile image
shanikab1 in reply to sharon1014

Thank you sharon1014 for that! A definite relief. I appreciate your response!

SeattleMom profile image
SeattleMom

Hi, Shani!

My sister was on tamoxifen for a couple of years. Her most difficult side effect was joint pain. Most typical regimen, I believe, is a 5-year course following chemo.

I would definitely follow your doc’s recommendation. Due to a “slip through the cracks” I was not treated with tamoxifen following my BC. Seventeen years later, it snuck into my spine. Don’t take any chances.

God bless you! XO Linda

shanikab1 profile image
shanikab1 in reply to SeattleMom

Thank you for your response! Greatly appreciated! <3

Nicu697 profile image
Nicu697

I took Tamoxifen for five years . I had no side effects except for occasional night sweats. Everybody responds differently. It's better to try it

shanikab1 profile image
shanikab1 in reply to Nicu697

Thank you so much for your response!

Nicu697 profile image
Nicu697

You're very welcome

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