klinefelter

[Daii123]

Hi everyone,

New on here! I have klinefelter's & I was wondering if anyone else was in the same boat with help/advice..

Thanks

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Hi Welcome no i don't have it but got to know a fair bit about it as i have/had hormone issues having a pituitary tumour.

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I have known it for like 10 years and is still struggle with it. Testosterone injections helps though. But still problems with body especially self esteem due to small balls and can't have own children.

Skinny and long so people think I have anorexia, and still problems with weak muscles, but not sure its due to the syndrome. I have another gene error too.

The injections is a bit difficult to regulate, I can get very horny about 3 weeks of 3 month, and I have struggle with bisexual thoughts due to feminine behaviour, thoughts, and that in fact I have two XX and a Y. So psychic problems. Never had erection problems though.

Social anxiety problems too.

Same boat, no help (but perhaps you can prevent something? Much of my social anxiety came first after I was diagnosed).