A year ago my, Ilan, my son went to sleep as any other night and in the morning we found him dead in his bed. Since that day our lives changed completely. Plus because we have another boy we found strength to carry on.
They had to make an autopsy but before the result the doctors told us that Ilan probably did from SADS (sudden arrhythmic death syndrome).
2 months after we got the results because the file was lost at the coroner's office.
Doctors requested samples to carry on a molecular autopsy to understand what exactly was the cause. After almost 6 months, we were told that the samples that we taken from my son are no good for extracting DNA as these are formalin samples and most DNA gets destroyed.
We've tried sending the samples to various labs in the UK but none of them could extract DNA.
My anger comes because the pathologist knew that this is probably a genetic problem, why didn't he keep frozen samples. Now Ramu chance of knowing what was the exact cause of death is gone as well as any chance of knowing if any of us including my younger son has that problem.
Is this negligence from the coroner's side? What can be done on that aspect and what can we do as a family to ensure we are healthy?