RLS UK is going to gather together forum user’s tips and experiences of using various drugs for treating RLS and add them to the ‘Treatment’ section of the RLS UK website (http://www.rls-uk.org). In the future, if someone is prescribed something new or their doctor makes a new recommendation, they will be able to view information about that drug in one place rather than search through old blogs and questions or ask a question that has previously been answered.
At present, we have no information on the website about Neupro patches so we’d like to start with that. 'Neupro' is the product name for a 24 hour skin patch which contains rotigotine. It is made by UCB. We are looking for bullet point style tips and comments which are likely to apply to most people. Please do not include any doctor’s names. We do not want to duplicate information that is already in the product leaflet.
To start the ball rolling, here are some of my tips about using patches.
The patches work best for me if I:
· take the patch out of the fridge at least 10 mins before I need to apply it. This helps it to stick to my skin and start working more quickly
· apply the patch and then secure it using 2 plasters (Sainsbury’s own brand ‘Sensitive’ ones are the only ones which have not irritated my skin)
· apply the next patch after 24 hours or so but leave the existing one on for a period so that the new one has time to start working. I think it takes a little while for the new patch to kick in
What works for you? Do you have any advice about the dosage, side effects, how to store them etc? As people add their tips and comments, if there is something that has worked for you too, please reply 'me too'. This will give us an idea about which tips seems to be the most useful. Please do not criticise someone else's comments as there is no wrong answer. We have forum users from all over the world so it would be also useful to state your country, especially if you mention something that only applies to your country. For example, Sainsbury's is an English supermarket!
Many thanks for your help.