ATLAST!!!!

[anettie1976]

ive found other sufferers like me im not alone atlast!!! ive always thought i was alone with this stupid thing i h8 it!!!!

[Hidden]

no your not and we hate it to

sorry you have it

[anettie1976 in reply to Hidden]

how long have u had it for? i think ive had this for atleast 20 yrs or so!!!

[Hidden]

oo your just a begginer them ive had it since i was 19, and im 63 now so 44 years and counting

Are you taking any meds for it ??

[anettie1976 in reply to Hidden]

yes i am on roprinerol MR

[Hidden]

hi welcome to the mad house lol sorry you had to find us though you'll find us all a friendly lot lol

i've had it since i was 8yrs old not quite as long as Niah.....

[Hidden]

thats the slow release one right?, im now taking mirapexin, 1.05 mgs one at night, and its a slow release one also

[Hidden]

you have to watch gypsy63, shes a total nutter

[anettie1976 in reply to Hidden]

u all sound gr8 to me but im gonna ave to go now but will be bac soon bye for now x

[Hidden in reply to anettie1976]

aye we're a good lot .... once you get use to us and the info you'll find helpful too

[Hidden in reply to Hidden]

ermmmmmmmmmmmmm excuse............me.......................... that's not very nice HA!! the cheek of the woman blumming gobalot..... lmao

[Hidden in reply to Hidden]

ojhhhhhhhhhhhhh that went in wrong box lol was at Niah....

[Hidden]

ooo sal i left another comment you go try now

from gobalot

[Hidden in reply to Hidden]

that it.... not fixed there comment yet ? that what you put ?

[Hidden in reply to Hidden]

nope it still won't have it gggrrrrrrr ,,, you should put on it that there's lots other people trying leave comments but having trouble doing so

[Hidden in reply to Hidden]

i said that in my email this morning

[Hidden in reply to Hidden]

o.......................h maybe should put it on page too then they'll see it too most probs get thousands emails lol

[Hidden]

ok gobalot...i'll go look

[Hidden]

not fair, i cant write your nickname on here, i would get told of

[Hidden in reply to Hidden]

hahahhahahahahah lalalalallalala gobalot.... hehehhe

[nightdancer]

Welcome to the MAD HOUSE is right! LOL What is in the water over there across the pond today?

Anyway, I have had RLS for 42 yrs since I was 14 and broke my back, so pretty much my whole life. Lots of experence here on this site.

[Hidden in reply to nightdancer]

don't think it;s the water lol never touch the stuff myself got no bubbles in it

me

[Hidden]

When it is compounded with Parkinsons. RLS is bad!

[billy5000]

i have been given DHC to help and for now it works ok for 10hrs and dulls it well.

[cumoneileen]

you are not alone.been suffering 47 years!!!! doctors looking at me as if i had lost my mind.I would try and explain my symptoms and they would look at me blank.at last a doctor recognised and suggested rapinirole.It works I get to sleep at night!!! although i still watch tv standing up.been on it for 2 months. Having a blood test for ferritin levels.(thank you jumppylegs) cumoneileen

[sue1406]

Hi- New to this site but so happy I've found you all. Great to think im not going mad - well not yet anyway. Suffered from growing pains as a child as did my mother and now my daughter. My sister, brother and son are fine so often wonder why and hope some kind of cure will be found before my daughter reaches my age(46) she is 23 now.

I had years of the odd twitches usually monthly and then in both pregnancies but then for the last 10 years ive suffered in my legs, arms,shoulders, neck and chest. Not constantly thank god but as I suffer with sleep problems it can be a huge problem. Not on any meds yet and luckily do find Tonic Water can help sometimes.

Absolutely dread going to concerts , flying or anywhere that involves sitting for even a short period as know it will trigger off and spoil my night. Have punched every part of my body on bad nights whilst crying as it really comes on bad. Tried baths, showers , sex, bar of soap in bed, exercise before, no exercise, no tea, no coffee, no alcohol, walking on cold floors, etc but when a bad bout it comes and its here to stay and wont go whatever I try.

Hope that with us all sharing our experiences and being there to support each other that someone may find something to help as I know how it feels to feel so tired and desperate.

[dangermouse]

Hi everyone -I'm new to this site as well, and so glad I found it. Glad to know I'm not going mad, kicking furniture and punching legs and feet ... and crying. I've had odd spasms of it for years but recently -last few months - it's got very much worse. I've not had a proper sleep for a while, and I'm very unpleasant to be near! Am trying to find out what I'm doing differently recently and eliminate it, but with no luck. With your tips and support I hope I can stop it spreading from my legs to other bits of my body.

Thank you all for your generosity in sharing your experiences.