I have this and rheumatologist says its fibromyalgia - which is very common in folks with rls.
hi, it does sound a bit like fibro, i have it also, but i have arthritis as well, so, could be that if you have it, my arthritis recently flared up, and it hit my fingers first, they got sore hot and swollen, then my feet started, had xrays, and it was the arthritis, just another thing to cope with !!
Just to add my voice, yes I have that and have arthritis too....as does my mum who also has fibromyalgia....... what a club we are in....can I cancel my membership please?
Thank you all so much for answering, I woke up in the early hours, (12.10 actually) as per normal!
I had my usual tummy probs wont go into detail! I also had headache and dizzy, blurred vision, and all the rest too. I just bet these are all common too. (also confusion and memory probs, it has taken ages to type this)
I have had enough messing around, I am going to straight out ask my doctor if it could be fibro ( sounds like it to me)
He just blames most things on Back problems, and humours me.
I don't want to feel like this, and really just want a diagnoses, instead of wondering.
A diagnosis is not easy to get, when they do not even know for sure what causes RLS. You have RLS, as you have said, so what other diagnosis are you looking for? Arthritis and RLS are two different conditions. I have both. We would LOVE to balme everything on RLS, biut we just cannot do that. We can , and most of us do, have more than one thing wrong with us at the same time. Patience is hard to come by when we want and need sleep so badly, but until an actual cause is found, instead of a hundred different theories, patience is what we have to have. It is not easy, that is why coping techniques are so important as well as meds. We have RLS, but it DOES NOT HAVE US, unless we let it take over. Granted, some nights it will take over and we cannot do a thing to stop it no matter what. Those are the nights we have to accept that RLS is here and not going anywhere, so how we cope has a lot to do with how our lives are affected.
I am not exactly looking for other diagnoses, just to find some kind of explanation for all the non RLS symptoms and why all this has happened so suddenly, and with rapidly increasing severity.
I am now getting breathing problems difficulty coughing and swallowing, all since April this year.
The RLS does not keep me awake at nights, the pain and breathing probs do.
Thank you for your reply, Caz
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Sorry Nightdancer, that should have read, 'looking for any particular diagnoses.
I am most definitely not blaming everything in RLS, I am not sure where you got that impression.
I have wondered, due to the sudden and severe onset of the RLS, if it could be secondary to something else as I gather is often the case. and as I believe you may have mentioned to me in the past.
I have researched Fibromyalgia, and yes I think it is a possibility, as I have had muscle pain and spasms, insomnia, and fatigue for sometime.
By no means am I set on this, I believe that one has to keep an open mind
I use as many coping mechanisms as I find work and do not rely on just medication, as you have said.
Again I thank you for your input, and hope you are keeping well.
Best wishes Caz
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Lack of sleep makes pain a lot worse, I think.
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Thanks Yikes I do agree with you, If only we could work out how to sleep!
there is no known connection to arthritis and RLS.
Hi jigglylegs, great name! yes i think you could be right, doyou also have back problems?
This seems to have been a trigger to all the rest, my GP says I only have arthritis in my spine, but the rapid onset of all these joint problems has me a bit worried.
I am seeing him nest week and am going to have a good talk, the neurologist has recommended blood tests and a Rheumatologist, so we shall see.
I saw your post and accidentally deleted it , Don't worry about having a good moan' we are all in pain of varying degrees, and if you can't moan here where else!
Yes I get back after a short while of gardening or walking but I always put it down to falling badly when being taught Judo as a teenager. Sleep has been better but the two different makes of tablet not helping much as I don't know when to take them for the best. As for the name its my partners name for my RLS. I hope you get some answers from the neurologist let us know how you get on.
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