Hi it's Tpebop from Kent in the British Isles here. Thought I'd give an update of what I've been doing.
I've received no reply to my e-contact to my Member of Parliament (MP - sort of like an American Senator I'd guess Nightdancer) yet and it's been three days. I'll give a few more days then write a letter, then cause a stink if I get no-where.
I asked at a community pharmacy about the blacklist and the amber lists etc., mentioned in these pages. Essentially what is prescribed is NOT (emphasis not shouting) up to them. After our quick chat it became quite clear where the problem lies. Our Primary Care Trusts (PCTs - organisations that provide and fund local NHS services in the UK) have been concerned about costs of drugs and probably applied unofficial bloacklisting which our GPs (you know what that means now Nightdancer, a sort of "family doctor"; do you have such things in the US?) who receive money from the PCTs have picked up on. The present British government is doing away with PCTs and passing control of costing to GPs. It sounds fine until you realise that all layers of the NHS are meant to make significant cuts. The politicians label them something else like "efficiency savings" but don't be fooled: the NHS and patients are suffering because of the financial constraints. So, now some of the GPs have cottoned on to the fact that THEY will control LIMITED funds and so have had to look at the cost of meds and will weed out the expensive ones. The government has made it clear: patients should have the medicines they need irrespective of the cost.
In my case 1 or 2mg/24hr Neuro patches (cheap); no problem; 3mg/24hr (MUCH more expensive); sorry can't have.
I'm just starting to uncover what this is all about but I think we may have to START CAMPAIGNING IN OUR OWN GP's SURGERIES and insist we have the treatment we need and if we don't get it contact local authorities/MPs etc.
The beat goes on...Tpebop.