COMPLEMENTARY EXPLANATIONS TO THE TWO PREVIOUS POSTS

[Arjiji]

Good morning sufferers

Clarifying the two previous posts on Sleep Hygiene and Anxiety Control.

I do not claim to be absolutely right. It is true that for severe cases of RLS, sleep hygiene is not going to have much effect, unless the symptoms of the legs are controlled; but I believe that Anxiety Control is valid for everyone.

As for the rest of the Sleep Hygiene advice, some are good for some people and others not; But there is no doubt that practicing them cannot make the disease worse and if it improves sleep better.

This disease of ours is very confusing because it seems that there is not a single disease but different patients: some have leg spasms, others motor restlessness, others pain, others unbearable heat; There are people who have spasms in the trunk-waist, there are those who have symptoms in the arms and even those who have them in the face.

Regarding the treatments: some do well with the oral iron supplement and others not, 40% of those who received venous iron infusions did well and the rest did not; For some the alpha2delta ligands improved and others not, the TME improves many people but not all, and so on, etc.

What I had never heard is that coffee was good for controlling symptoms, and neither was alcohol, more so in all the seminars I have attended and in the reports I have read they say that it is counterproductive.

Anyway, there is my contribution and if someone can bring improvement to follow my advice and whoever believes that it does not serve them should not follow them.

Everything is confusing and rare in this disease, but what is very good is to relate to each other and communicate our experiences and experiences, take advantage of the experiences of others and see if we can apply them to ourselves ... and if they are going well, congratulations and if not then keep looking.

Thank you for your attention and for your contributions.

[Accipiter]

Symptoms of RLS seems to have a threshold, and many factors can lead to pushing over or not reaching for a night of variable outcomes.

So any post with some definitive statements on what makes RLS better or worse is going to be maybe right for some people. I have no issues with alcohol, chocolate, antihistamines or sugar. These decimate others.

[Hidden]

Thank you for your contributions.

I'm sure they will help some people.

Anxiety management is a great idea for everyone, irrespective of whether we have RLS or not. Strategies to help reduce anxiety I believe can be particularly helpful for people with RLS as anxiety can cause a vicious circle of worsening symptoms and hence worsening anxiety.

It is evident that relaxation techniques are ineffective or impossible once RLS symptoms have started. However they can be used at other times to prevent anticipatory anxiety.

Physical relaxation techniques however aren't the sole anxiety relieving strategies.

I wouldn't be too disheartened by any skeptical comments about psychological strategies for coping with RLS.

It's a shame that there may be people who might benefit if they would give more consideration to them, but don't.

Perhaps this is partly because RLS can erode any sense of self efficacy and also it's easier to look for some external agency to deal with it than it is to look to ourselves.

[Arjiji in reply to Hidden]

I totally agree.

Thanks for your support

[Joolsg]

Thanks Arjiji.

There is an acronym many use on here - WAAD. We are all different.

It does seem to be true for RLS.

I never discount any remedy/device/medication/diet that people say helps them. It may only help 1% but any one of us could be within that 1%.

Thanks for sharing advice on sleep hygiene and anti anxiety tips.

[YodaDog]

Thanks Arjiji for your contributions.

[Arjiji]

Thank you for your support.

I believe that the best contribution of this association is to disseminate the therapies or aids that have been effective for people, and to give empathy to all. Some of these therapies or techniques may be alternative medicine, or even tricks from your great-great-grandmother, but if they work for you, praise them. And if they do not have dangerous side effects, why not try them if the medication is not proving as flattering as we need?

There is the freedom of each one to use it or not, but welcome to the one who spreads it.

[Pissoff1]

So true! Thanks