Hi everybody , what a godsend this forum is . I believe I have been suffering with RLS for at least 7 years . My first memory of it began with the 'fizzy' , 'itchy' internal sensations whilst watching a movie , kept getting up walking around and stretching which gave relief for very short periods . Then after a few months it appeared to be to a regular thing of an evening , which interupted my nights sleep on many occasions . I guess it was probably some months before I visited the Doctor which (after a lot of careful thought on how to best describe to him, as even listening to myself explain it to my husband I sounded completley off my rocker ) was no help , as he may as well of just shrugged his shoulders and told me to stop wasting his time. So I did my on research but at the time there was very little I could find , so I thought I'll just have to put up with it . In 2009 I started having lower back trouble and reminded the doctor about my legs only I wasnt sure if it was RLS anymore because the 'fizzy, creepy' feeling was less than before but now I was geting terrible pains all over my left leg which were not helped by any over the counter pain killers , but he basically dismissed this and said it was due to my back problem . I was sent for an MRI which was clear and was also told that I dont have sciatica (which the rest of my family suffer with), just none specific lower back pain but still no answers regarding my 'crazy legs' .
About 2 months ago I had the worst ever bout of it, even had to take 3 days off work as my job requires me to sit for 5 hours, only broken by the occasional visit to the bathroom . The pain was unbearable but was slightly relieved with my legs elevated . Visited the doctor , this time he thinks I have tendonitis in my heel and this may explain the pains in my leg , GIVE ME STRENGTH , after reading this forum I am amazed at how little doctors appear to know about this. Strangley enough immediatley after that bout I had 2-3 weeks of no pain ,no restlessness , nothing . I optamistically thought that was it that bad bout somehow put an end to it - not flamming likley . It came back and slowly got worse . I will be seeing my doctor on thursday fully prepared with all the information you wonderfull people have made available . : )