I am sorry, i came on here looking for serious advice and help with living with RLS. With the exception of Ellisse no response..nothing. Thank you Elisse
RLS is affecting my life in a big way and i am sorry but when i see the change is design of the website getting more attention and (one member) posting a "I am leaving" message with the same outcome I have to ask myself.. is this a serious attempt to help people with the issues of RLS.
I have a very good specialist who advises me medically, so I am not after deviating from his prescriptions.
What I do need is how to cope with getting increasingly tired, to the point that I have had to find somewhere to sleep at work. Advice on how to manage the depression that goes with not getting all the chores done and the "to do" list getting increasingly bigger, because I am exhausted. But most importantly is there a president set for whether RLS is classed as a disability in the workplace and if so are we covered by the Equality Act 2010.
What experiences and tactics employers have used to try to terminate contracts due to RLS.. and what are their right's and responsibilities.
My employer is taking the line that it has tried to make suitable adjustments but not been able to.. they are now putting me on a one month period to find redeployment ( offering me interviews in Ireland, London places that cost me a fortune to get public transport to), they have advised after this one month period they will then terminate my contract under the capability policy.
The reality is that the reasonable adjustments have been giving me work that is so mundane that under different circumstances it would be considered harassment, such as replacing grub screws in hand rails.. over 1000 of them, doing plant inspections (walking around the same bit of plant every day looking for non existent defects!) or simply giving me nothing to do. - I am a fully qualified Electrical and Automation engineer.
They were gracious enough to allow me to flex my hours for a while, but then a new boss came in and decided I had to be at my work station by 7:00 a.m. - I travel to work by train and arrive on site at 7:02 - this wasn't good enough. So i pointed out that this would mean me catching an earlier train and having to get up at 4:45 every morning.. clearly not good for my sleep.
So for the time being I am now off work with what the Doc calls "Low Mood"- But a soon as I return I know I am looking forward to being unemployed.
Paradoxically a Colleague of mine who injured his shoulder and required extended time off, was given phased return to work and some how the company managed to find him stimulating and interesting work to do..
Probably because he injured himself at work! Or maybe the physical is more accepted.. tiredness is still seen as a something you should just get on with!
But this is what I had hoped to get out of this site.. useful and practical shared experiences and advice, but I am sorely disappointed..most of the postings are of the "tea and sympathy" variety. Fine if you want a pick me up for coping with a short term issue, but not much good for coping with the side effects of the condition.
I am lucky, I have an understanding wife, but I think the rest of my family do not understand just how debilitating this condition is, the urge to sleep isn't just tiredness for me, it is compelling and like i have been drugged. I just have to sleep.
There is a lot of prejudice and ignorance about RLS, having inane dialogue.. or more often monologue about what you had for tea isn't going to help the cause.
Is this site a place to seek advice or shared experiences or simply a chat room.
Surely there are lawyers, doctors, specialists employers, HR experts out there who suffer from RLS..can this site encourage these people to be available for advice..?