Hi
Recent blood tests revealed I had elevated ferritin serum stored , 363 ug ( something) I’ve had various tests to see if inflammation is the cause and nothing has been found. Anybody else with the same problem? Could it be related to my restless legs?
It's not a problem.
Ferritin up to 1000 is not a cause for concern.
However, if you continue to get very high readings-- up over 1000, then it might be an idea to get tested for haemocromatosis (sp ?)
You are correct in that ferritin is a marker for inflammation-- but that could be a dose of flu or covid or wound.
Don't be worriting!😝
Mine is over 500 consistently. As Madlegs said it is not a problem.
Thank you both for your replies, GP was concerned inflammation could be cancer as I was also losing weight. That has now been ruled out. I feel less stressed now. Do you think it is related to rls.
RLS doesn't cause inflammation. However elevated ferritin if this is not normal for you can indicate underlying inflammation.
As Madlegs1 writes, haematologists are not worried by ferritin levels up to 1000, but that's with the caveat that they must understand the reason why the levels are high - a recent iron infusion or an inflammation - and that they expect the level to fall over time. And as SueJohnson writes/implies, stable levels over 300 (which freak out some doctors) need not be a worry.
Where there may be a concern is if levels were to keep rising without explanation, which could be indicative of haemochromatosis, where iron levels in the body slowly build up over years leading to iron overload, or an undetected source of inflammation.
So: my understanding is that a stable ferritin reading around the levels that you and Sue are experiencing need not be a worry; however, your doctor should continue to monitor your level and refer you to haematology if it rises significantly without explanation.
I have another blood test in a month. Thanks for the reassuring response.
No need to worry Elsie, Following an iron infusion 5 years ago, my ferritin went from 37 to 480. Currently my ferritin is down to 87 and I’m scheduled to have another infusion.
Has it been hard for you to get approved for an iron infusion? I’m on Medicare and they have denied as my levels are in “ normal” ranges. This is despite receiving documentation on people with RLS need higher levels.
I’m sorry to read about your difficulties in getting an infusion covered. For this up coming infusion I did not have any problems with insurance. However, at the time of my previous infusion, my insurance indicated they would not pay for it. ($5,000) It was not covered under a diagnosis of RLS. So after some adjustments, it was covered. Yet another example of how RLS is not taken seriously. I suspect the name alone has something to do with it.
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