Spoke to soon!

[Delilah162]

Hi All, After saying how fab I was doing on the Oxycodone. I'm now having movements again and had a dreadful night last night. Slept from 6am to 8.30 am have felt completely wiped out and deflated today as it just hit home this dreadful illness is there just bubbling away under the service! I'm seeing the neurologist on the 6th of December. Any ideas folks? This is about the 3rd night this week I've had problems. Last night was the worst though. I'm back to my nightly marathon running Sue! 🏃‍♀️ 🤦‍♀️

[SueJohnson]

I'm sorry to hear that. I would suggest you increase your oxycodone. 10 mg is still a low dose.

[Madlegs1]

How are you taking the oxycodone?.

Which variety is it?

What are your triggers?

[Delilah162 in reply to Madlegs1]

I take it around 6pm each evening. Its longtec 10mgs. I have cut a 5 I half a few times and taken that at 2 am.I've never really identified any triggers. I am caffeine free though. I eat a pretty good diet as I'm ceoliac too.

[Madlegs1 in reply to Delilah162]

As Jools says,

And keep a food diary to identify possible triggers!👍☘️

[Joolsg]

Try taking 2 x 10mg. That is how you're supposed to take it. Oxy is supposed to last 12 hours, so it's given twice a day, every 12 hours. However, most people report they get interdose rebound as it wears off.Others report this even if they take it every 12 hours. The way to avoid interdose rebound is to take it more often.

So try 10mg twice a day. If it stops working, ask for 5mg pills every 6 hours.

[Bieler]

I take tramadol and it’s a Godsend. Many on this forum swear by it. The only time I get flare ups is when I take an antihistamine or when I drink something with aspartame Or sucrolose in it such as Gatorade Zero or sugar feee creamer. Since identifying those triggers for me; I’ve had no issues.

Tramadol is not a strong drug by any means, however, it does something to help with neurological pain. Please talk to your Dr and give it a go, if you have not already tried it.

I take 50 hcl mg 4x per day. Some people take 100 mg at night. Hope this helps.

[Delilah162 in reply to Bieler]

Ah thank for your reply it's great to know you have found something that works so well. I think I will do a food diary to look for possible triggers. The only thing I am sure of being a trigger is caffeine.

[Bluegerand]

Hi Delilah, I do sympathies with you. RLS can be debilitating and frustrating, especially if it is night after night. I have had it since childhood when I had to hold down one leg with the other to prevent banging my knee under the desk. For many years I called it jumping legs and didn’t know it was a recognised condition. I fact l Have PLM, periodic limb movement, much the same. I do not take medication for it. I get up and make a drink or read if it is not too distracting. But my best treatment that works for me is a 4x6” bag filled with sand, as soon as I feel the symptom I slide my foot or feet under it and usually it is sorted. May be it would work for you. 😀

[Delilah162 in reply to Bluegerand]

Thank you for replying.Ah it's a wicked illness. I have the periodic limb movements too. Unfortunately it affects my arms and head too.

It's a shame you've had it since childhood 😔.

For me it's been bad in the last 6-7 years. But really ramped up in the last 2-3. Hopefully it'll settle with an adjustment to my medication. I'm glad the sand bags help you.