Methadone prescription: My neurologist... - Restless Legs Syn...

Restless Legs Syndrome

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Methadone prescription

tagaxel profile image
19 Replies

My neurologist called a prescription into CVS for methadone but CVS said they couldn’t fill the prescription because the doctor wrote it for “restless leg syndrome” and they will only fill it for “pain”. Of course the real reason is being prescribed is to get me off from pramipexole! Does anyone else have a problem getting there methadone prescription filled? How do most physicians write the prescription?

I called the doctor's office and the person I talked to said it would look "suspicious" if they changed the reason. I told him what I thought of that notion and ask them to simply rewrite the prescription. Has anybody else had problems like this?

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tagaxel
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19 Replies
Madlegs1 profile image
Madlegs1

I'm in Ireland and was prescribed opioids for post spinal reconstruction.

The doctors now accept that it is mostly for Restless Legs, but since my prescription is emailed direct to the pharmacy, I don't know what it actually says.

It's a ridiculous situation you find yourself in.

Hope you can get to resolve it.

All the best.

dancer2 profile image
dancer2

My doctor wrote me a script for Buprenorphine tablets and put it was for chronic pain and my insurance would not cover it. I think the pharmacy would have filled it. Not sure though.

Joolsg profile image
Joolsg

Dr John Winkelman has done a talk on this on YouTube and he did stress that doctors in the US had to say opioids were for PAIN when requesting prescriptions.See if the doctor will rewrite it as '-for pain.associated with RLS.'

tagaxel profile image
tagaxel in reply toJoolsg

That's the ironic part! My doctor said he studied under Winkleman! He also told me he had several patients on methadone so you would think he would know how to write a proper script.

LotteM profile image
LotteM in reply totagaxel

Maybe it is the pharmacy? Have you tried a different one? Or do you have to go to this one have the costs covered by your health insurance?

Joolsg profile image
Joolsg in reply totagaxel

Oh dear! Hopefully the pharmacy will accept the amended wording of ' for pain related to severe RLS'.

tagaxel profile image
tagaxel in reply toJoolsg

Do you have a link for that video?

Joolsg profile image
Joolsg in reply totagaxel

youtu.be/h5Hyhmxli54?si=UN-...

Dr Winkelman talks about augmentation first and then reducing with the help of gabapentin. Further along he talks about opioids and stating they are 'For Pain'.

SueJohnson profile image
SueJohnson

Since when does the pharmacist get to decide what prescriptions they will fill when written that way? That is ridiculous!

Merny5 profile image
Merny5

Amen Sue!

Merny5 profile image
Merny5

I just checked my bottle and it reads “ take 2 by mouth daily” and I get mine filled by CVS pharmacy.

Birdland profile image
Birdland

I get my methadone script filled at RiteAid in California. I’ve never had a problem and the bottle reads, “Take nightly as needed for Restless Leg Syndrome”.

BettyRae profile image
BettyRae

As I understand it, what you feel with RLS, is technically call PAIN by US neurologists.

David7 profile image
David7

I take methadone for RLS but the prescription says " take for pain".Have your Dr. rewrite and it shouldn't be a problem. I use CVS as well. Methadone is a great help in calming RLS so work it out with your doctor.

Best,

David7

RobErestless profile image
RobErestless

hey tagaxel… sorry to hear this but yes, I had the same issue with CVS (also in USA) - ended up getting it through Walgreens. It’s hard to understand a system that now allows the pharmacy to override our physicians… but that’s the way it is.

violetta254 profile image
violetta254

I don't think my doctor writes anything about what it is for and it has filled at the CVS mail-order pharmacy for at least a year. Mail order will give me a 90 supply too if the doctor writes it that way so I don't have to go running to the pharmacy every 30 days.

LegJimmies profile image
LegJimmies

I was on dopamine against meds for years and the last one was a neupro patch’s side effect was gambling—horrible consequences. Coming off of it was not good. My neurologist prescribed Lyrica (pregabalin) and low dose of methadone and take these twice a day. I also had an appointment with a specialist at the Rochester, MN, Mayo Clinic and was told to continue these two meds.

Every month I have to call my neurologist and ask his staff to call Walgreens for a month’s supply of methadone pills. They will not take a written prescription. It has to be called in by the doctor’s office. I hope this helps in some way.

Iloverls profile image
Iloverls

I get really upset that doctors and other non- sufferers say that rls is not pain. When I described my symptoms to my gp she wrote on her notes neuropathic pain. Rls is painful. Nerve pain is torturous pain. Even scholarly Paterson always say ‘uncomfortable’ etc like it’s a minor issue.

Iloverls profile image
Iloverls in reply toIloverls

Paterson = papers ( oops)

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