rls getting bad

[Car14]

hi all my rls does it a lot at times and other not ? I have to sleep on the settee at times as it wakes my wife up just what to be a normal married couple help please

[SueJohnson]

I have already given you lots of advice including getting your ferritin checked and what medicine to ask for. You just need to follow it.

[Madlegs1]

Sounds like triggers if it is on and off.

What does your intake diary tell you?

What medications are you one?

[Car14 in reply to Madlegs1]

Hi none of the doctor take Gada and zine

[Madlegs1 in reply to Car14]

I don't understand your reply. Sorry.

[ChrisColumbus]

Many of us here have at times been where you are now, having to spend some or all of the night on a spare bed or sofa. Sue's clearly given you some very extensive advice before, but I'll just summarise some key points:

1. Arrange a full panel iron blood test with your doctor, which must include serum ferritin and transferrin saturation. This should be arranged for a morning, you should have fasted for 8-12 hours overnight (only water in that time), and you shouldn't take any iron supplements or multi vitamins containing iron for 48 hours before. Post back here with the actual numbers - don't let your doctor just tell you 'normal' as very few doctors know anything about RLS.

2. Many prescription and over-the-counter medicines can trigger RLS: post back with a COMPLETE list of anything at all that you're taking. That's everything, including things like cough medicines, cold remedies etc.

3. What you eat and when may contribute to RLS. Particular problems can include too much sugary food, too much caffeine, diet food and drink containing artificial sweeteners, in some cases alcohol, etc, particularly consumed in the evening. Not everyone has dietary triggers, but these are quite common.

4. You are not alone, we can help, but please don't take ANY prescribed medications for RLS before coming back here with answers to the points above.

[beady3]

I sleep on the settee often as my legs are awful so painful , I am 87 now and I think that’s it , lots of people havnt heard of r l s , good luck to you

[Elisse3 in reply to beady3]

Beady are you still taking the pramipexole? or weaning off it.

[Nuthatch01]

Hi Car14, I have just been prescribed Pramipexole been on it for 2 months and my RLS has stopped but you have to get your bloods done first to see if you have any deficiency, talk to your doctor and start the ball rolling the sooner you do the better, good luck 😉👍👍👍

[DicCarlson in reply to Nuthatch01]

Hi - I'm sure you are aware that Pramipexole is no longer a first line treatment. Somewhere down the road you will suffer augmentation. And it could be years from now, but for many the savior becomes the devil.

mayoclinicproceedings.org/a...

[SueJohnson in reply to Nuthatch01]

You were on ropinirole before. Why did you switch?

[Madlegs1 in reply to SueJohnson]

Sue. ---You must have an awesome spreadsheet! 😝

[Nuthatch01 in reply to SueJohnson]

Doctor changed it because there is a shortage of Ropinirole in the UK