An interesting article on iron infusions and when they should be considered for the general population.It mentions that inflammation can stop iron absorption.
It also confirms that newer iv iron formulations are much safer with very low risk of adverse side effects. Most GPs will say iron infusions are unsafe and too risky so this might help anyone trying to push for an infusion for RLS.
It says that the higher the inflammation, the higher the ferritin in the article referenced pubmed.ncbi.nlm.nih.gov/273...
Sue, I am due my next blood test soon to check my ferritin levels.My GP says I do not need to fast beforehand but I am sure you said it is better not to eat before the test?
Yes you want to fast after midnight.
Thanks Sue and unless my ferritin levels have shot up I too will push for an iron infusion.
Very interesting thank you Joolsg.
I’ve just been given a date to go for an iron infusion arranged by my sleep specialist. My ferritin was down to 13 and iron to 11 no wonder my RL was through the roof. I have ulcerative colitis that has been flaring up and also have Polymyalgia Rheumatica. I can’t tolerate oral iron except for Spatone so it was decided that an infusion was the answer.
I really hope you see some improvement. It's very fast (30 mins in total).
And spatone only has 5 mg of elemental iron so wouldn't help you much anyway so glad you are able to get an infusion.
Thanks Jools, some useful information there.
I have had my 2nd of 3 doses of Venofer 300mg. Fingers crossed that I get some relief soon.
sciencedirect.com/science/a... not heard of that formula being used for RLS. I know that the studies use Injectafer ( Ferinject in some countries).
Fingers & toes crossed for you.
Venofer is very common here in the US for RLS. It all comes down to what insurance will pay for, of course. Venofer was not Dr. Winkelman’s first choice for me. He ordered/prefers Feraheme which is typically given in 2 doses of 510mg, 1 week apart. Are you familiar with Dr. Winkelman?!
Yes. I'm part of his opioid study, even though based here in UK. I think Injectafer is now the most common infusion in the UK. Hope you see benefits soon.
You might find this interesting
healthunlocked.com/rlsuk/po...
It is very interesting. There is so much more to learn. Trials involving RLS patients and different iron infusion formulas would help.But as we know, we're at the back of the queue for any research or trials.
brilliant piece of evidence - something else to print and take to the gp. Thanks Joolsg
Very interesting. Thank you Joolsg.
Iron Infusion - Ireland
Iron Infusion in the U.S.
RLS & Iron infusion seems to be working!
Dr. B on Iron Infusions
Accessing Iron Infusion
