RLS now.......PARKINSONS next?? - Restless Legs Syn...

Restless Legs Syndrome

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RLS now.......PARKINSONS next??

Retiredlady profile image
14 Replies

Is there any research out there to suggest that our rls could develop into Parkinson’s disease?

I know my rls is coming on when I get a strange uncomfortable feeling in my head which then ripples though my body!Do any other members have similar symptoms please?

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Retiredlady profile image
Retiredlady
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14 Replies
SueJohnson profile image
SueJohnson

Most people with restless legs syndrome have the "idiopathic" form, meaning there's no known cause. For them, there is no risk of RLS developing into something more serious, like Parkinson's disease. Source: webmd.com/brain/restless-le... Also: Although they may be treated with the same medications, RLS and Parkinson’s disease (PD) are very different diseases. Some PD patients may also have RLS symptoms, but having RLS does not increase your risk of developing PD. source: movementdisorders.org/MDS/R...

Retiredlady profile image
Retiredlady in reply toSueJohnson

Thank you Sue,that’s reassuring.

glosrunner profile image
glosrunner

I notice a change in "feeling" when RLS is starting. I have been assessed for Parkinson because my father had it. I was reassured that I do not have it, and that RLS is not a precursor to getting Parkinson's. RLS a different condition in which dopamine is stored by the brain in less quantities and in the wrong areas, compared to normal. It's faulty signaling rather than damaged or lost nerve pathways. IMOP. I am not a specialist. Go to see a specialist. By the way I have RLD of course!

glosrunner profile image
glosrunner

Should read RLS not RLD.

Cork profile image
Cork

I also get a strange feeling in my head right before the RLS starts, so I know its on the way! I know that my grandfather died of Parkinsons, but I've never researched if it has any link to RLS.

SueJohnson profile image
SueJohnson in reply toCork

Are you taking any medicines for your RLS?

Cork profile image
Cork in reply toSueJohnson

No Sue, I've never taken any medication for it. The most it lasts would be about 2 hours (but it has lasted the whole night in the past), and sometimes it wakes me up during the night. But overall I feel I'm one of the lucky ones.

SueJohnson profile image
SueJohnson in reply toCork

Have you considered taking gabapentin which can completely control your symptoms?

Jumping-beanlegs profile image
Jumping-beanlegs in reply toSueJohnson

FYI.. Gabapentin doesn’t work for everyone .. unfortunately

SueJohnson profile image
SueJohnson in reply toJumping-beanlegs

Yes - I realize that. It usually happens when a person has been on dopamine agonist over along period of time. And, of course side effects can occasionally stop a person from taking them. But otherwise if one takes enough, they do work. Did you try it and it didn't work for you?

RestlessMe profile image
RestlessMe

Hi, yes I can tell my legs are going to start jumping around. I get a really weird feeling in them.

RestlessMe profile image
RestlessMe

My mother also had Parkinson’s disease. It is something that is weird me too but I am sure that they are very different things

Munroist profile image
Munroist

My father had Parkinson’s. I’ve seen the medical literature stating that there’s no link but until RLS is better understood I’m not sure how anyone can be certain. Possibly it’s from a statistical perspective but seeing as many doctors don’t know anything about RLS, it makes you wonder whether they actually asked about Parkinsons on the family.

RLS and Parkinson's Disease have very different underlying biological mechanisms and there’s no evidence that RLS can lead to Parkinson's Disease.

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