Phone appointment with doctor re bloods - Restless Legs Syn...

Restless Legs Syndrome

21,479 members15,151 posts

Phone appointment with doctor re bloods

RestlessMe profile image
8 Replies

Hi, I have a phone appointment in the morning with the doctor to ask for full iron blood test

Well they just do these blood test for me or am I likely to expect some resistance. I am guessing that they are not routine

I’m in the UK has anybody had any experience?

Written by
RestlessMe profile image
RestlessMe
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Joolsg profile image
Joolsg

Refer the GP to NICE guidelines. Even though they're about 4 years out of date, they do mention full blood tests.

cks.nice.org.uk/topics/rest...

RestlessMe profile image
RestlessMe in reply to Joolsg

Thanks for this. I’ve had blood test this morning. So results early next week.

DicCarlson profile image
DicCarlson

Here is some interpretation of iron test results...

bloodtestsresults.com/iron-...

Hello, did you get the blood tests? My doctor says rls is linked to low iron levels. I’ve been taking iron tablets on and off for years, I get anaemic if I don’t take them and have had several investigations as to why to no avail, but when I’m taking iron tablets it keeps my rls at bay so I definitely think it’s linked

RestlessMe profile image
RestlessMe in reply to

Hi, yes I’ve just had them done this morning and get the results next week. From what I’ve read it’s the ferritin levels which need to be looked at.

This is a bit like taking an exam in the new subject. But it’s very interesting.

in reply to RestlessMe

Well good luck 🤞🏻 hope they diag iron tablets, it certainly helps me

Dgriss profile image
Dgriss

I am from Toronto, ON Canada.

I am meeting with my doctor in a couple of weeks. Below is what I plan to ask for.

I have made a copy of the Restless Legs - Mayo Clinic study from 2021.

This study is also available on rls.org

Every penny spent on a membership to join the Restless Legs Syndrome Foundation is SO worth it.

BLOOD WORK

**Early morning blood work after Overnight Fasting

1. Total or serum iron

Recommended value for RLS patients: greater than 60 ug/dL (adults)

2. Percent iron saturation (percentage Trans Ferritin saturation)

Recommended value for RLS patients: greater than 16%

3. TIBC (Total Iron-Binding Capacity)

Recommended value for RLS patients: less than 400 ug/dL

4. Serum ferritin

Recommended value for RLS patients: minimum 100ng/mL or better (adults) but closer to 200 is better. Some RLS patients need higher than 200

RestlessMe profile image
RestlessMe

I was really grateful to the advice from this forum to fast overnight and have a blood test as early as possible. This advice wasn’t given to him by the doctors.

You may also like...

Blood test done now chat with doctor

I’ve finally had my blood tests done and am having telephone consultation with doctor at 5pm...

advice re iron levels

requested a full blood test recently and before joining this forum I never questioned the fact that...

Proximity and phone screens

increases when sharing a bed? Has anyone else found that looking at a phone screen in the dark...

Doctors

Been to doctors this morning re augmentation due to ropinerole and left feeling it was up to mewhat...

Advice Needed re Serum Ferritin Levels

my notes and said that I had had this checked (as part of a previous blood test obviously) and it...