Iron Infusion Timing

[K2D2]

Having an iron infusion in two days. How long will it take to know if it provides RLS relief?

[SueJohnson]

It may take up to 2 months although some have seen results much sooner.

[ELECTRONTRAV]

Sorry to say it did not make any difference for me. I had the infusion in Yeovil, they seem to have a special wing devoted to infusions for RLS. It took about 20 minutes quite painless and no side effects. I still have RLS, now dealt with using 300mg pregabalin and 1 mg neupro patch this combination seems to work well, but I would like to get off the neupro patch.

[SueJohnson in reply to ELECTRONTRAV]

Try cutting the neupro patch in quarters and reducing it by 1/4 every few weeks.

[ELECTRONTRAV in reply to SueJohnson]

Hello Sue, tried that but I do not seem to be able to get below 1mg, I am also on 300mg Pregabalin, basically I am free of symptoms. I take the pregabalin before bed and change the patch in the morning. Regards, Frank

[SueJohnson in reply to ELECTRONTRAV]

You probably need a low dose opioid temporarily to help you get off it.

[K2D2 in reply to ELECTRONTRAV]

I understand that iron infusions are effective in about 60% of RLS sufferers, so I’m hoping for the best.

[vikkkk in reply to ELECTRONTRAV]

Can you tell me more how you got the infusion in Yeovil? What was your ferritin and how long were the waiting times?

[ELECTRONTRAV in reply to vikkkk]

Hello Vikkk, I self referred to the hospital at Yeovil, they have a separate wing for infusions, it is the Kingston wing. It only took a couple of weeks to get it arranged and visit, all quick and easy. cost about £200 at least ten years ago, Regards,Frank

[Su1980]

Hi, for me it took between 1 to 2 months to notice the effects of iron infusion and these effects lasted for about 6 months. Good luck!

[SueJohnson in reply to Su1980]

Is your RLS under control?

[Su1980 in reply to SueJohnson]

Yes, I take 0,27mg of Pramipexole 2 hours before bed and I’m waiting to get a new iron infusion as the iron level (ferritin) has dropped and I’m starting to have symptoms earlier in the day

[SueJohnson in reply to Su1980]

Have you considered coming off pramipexole and switching to gabapentin since up to 70% of people on it will eventually suffer augmentation which believe me you don't want.

[Su1980]

Yes, I already tried Gabapentin but had side effects like halucinations, putting myself in danger. In fact this was the 1st treatment I tried