Neurological Survey

[Joolsg]

Further to Kaarina's post, I've just completed the Neurological Alliance Survey and suggest everyone does the same.

Here's the link.

neural.org.uk/

[yorkie24]

Just finished doing mine!

[Rosg72]

All done 🙂

[rls-insomniac]

All done too!

[Elffindoe]

I've done the survey. I seem to recall doing a similar one perhaps about a year ago?

Sorry to be a grump bucket, but I find the survey disappointing and can't imagine that it will have any impact on services for people with RLS at all.

It only allows you to give answers to the questions it asks and tbe questions appear to be only relevant to the main "disabling" neurological conditions and none appear to be based on the particular needs of people with RLS.

A more trivial grump is I'm a little surprised at the poor quality of the survey. E.g. I answered some of the questions based on my general health rather than on my RLS (or any neurological condition).

If anybody else does that the survey will give a false impression.

[Joolsg in reply to Elffindoe]

It's the first time RLS has been listed as a separate neurological condition so it's a start. Like Munroist, I used the box for " other comments" to make specific points about RLS.

[Munroist]

Done. Made good use of the “other comments” box at the end to make the points they didn’t ask about such as GP training and RLS research.

[Joolsg in reply to Munroist]

I did the same

[rls-insomniac in reply to Joolsg]

Me too!

[Jumpey]

Completed.

[Hidden]

Done

[rkatt]

Finished mine

[Joolsg in reply to rkatt]

Just sent you a message.