Lumps on the inside of your shin bone ,

[Roblylegs]

Does anyone else have lumps on your legs i have 2 on each leg and when pressed give alot of pain ,one is on that big bone shin bone i think,about 100mm below my knee on the inside ,the other is at the bottom on the same side above my ankle.ive had u/s and the Dr say its muscle.but i find if i put strong pressure almost enough to bring tears it does help my legs.I found a DR in the U.S.A that does a nerve operation and he describes in his videos the cause of R.L.S and he says its in our nerves not our brain .

[Madlegs1]

What you are describing, simply does not meet any criteria for RLS.Be very careful of getting an operation on any part of your body ,without extensive research. Especially be careful with so called medical sites. Check out reviews, but not from the site. Trust pilot is good.

I'd be looking at taking magnesium and potassium, and also gentle massage from a professional.( Sports therapist?)

Good luck.

[Roblylegs in reply to Madlegs1]

HI Madlegs thanks for your concern im not knew to this problem and have suffered for over 25 years from R.LS. please look at this Dr site and you will understand.and all the medical evidence ive read Dr are still confused at why this occurs in some people.

youtube.com/channel/UCB812y...

[Hidden]

Sorry to hear of your suffering.

Firstly, although people with RLS often describe symptoms that sound a little unusual, I have never heard of anybody having lumps due to RLS I also cannot imagine it being a possibility.

I'm no doctor so I can't offer any valid opinion about what the lumps are. I do have some knowledge of anatomy and physiology and I can't see how the lumps can be "muscle". It doesn't see to be an explanation at all.

If there is some kind of association between the lumps and your RLS, it still doesn't explain what the lumps are.

I suggest you seek a second opinion on that.

I'm not entirely clear what is actually meant by RLS bring in our nerves not in our hrain. Hopefully this a misinterpretation of what this doctor is saying. If he/she is carrying out surgery based on this idea, I find it truly frightening.

There is ample incontravertible evidence that RLS is primarily due to brain iron deficiency and consequent dysfunction is the neurotransmitters adenosine, dopamine and glutamate.

This affects nerves IN the brain and spinal cord.

There is some research which suggests that some cases of RLS are associated with problems in peripheral nerves, but this isn't well established.

In any event wherever the "nerves" are that this doctor may be referring to, I can't imagine how surgery could help.

I know that sometimes when chronic pain is a problem, sensory nerves may be ablated which will numb the area affected. RLS involves motor nerves, ablating them would cause paralysis.

Strangely, I have heard of cases where people are convinced that to be who they really are, they need to have their legs amputated. No amount of psychotherapy seems to help with this, no drugs and it's not classed as a mental health disorder

In the UK it isn't possible to have your legs amputated if there's nothing wrong with them, even privately. I have heard it's possible in at least one other country.

Overall, I'd seek further investigations of your lumps.

[Roblylegs in reply to Hidden]

HI there thanks for your reply actually this DR has been practicing fr over 30 years and knows what he is talking about i hope i can share the link to his site here .there are alot of videos where he explains why RLS is a nerve problem and not in the brain.youtube.com/channel/UCB812y...

[Roblylegs]

youtube.com/watch?v=_sKFVTp...(Not working as expected?)

[Hidden]

I' m sorry I'd rather believe what the numerous scientific studies have found about RLS.

If you want to believe what a YouTube video says, it is of course your choice.,

[Hidden]

I have no wish to cause you personally any offense, but I think for the sake of others reading this post I have to comment on this video.

There is one statement that the presenter made that I think is entirely untrue, i.e. that there is no consistent evidence that dopamine is involved in RLS.

I find his claims about the cause of RLS confusing. He first mentions neuropathy in which case I believe he is referring to periphereal nerves, i.e. outside the central nervous system, (CNS). Peripheral neuropathy is known to be associated with RLS as an exacerbating factor.

He then moves on to nerve compression and seems to be referring particularly to nerves going TO muscles, i.e. motor nerves. It is true that nerve compression can be a cause of peripheral neuropathy.

However, nerve compression is not the only cause of neuropathy.

IN addition, RLS is both a sensory and a motor condition. If it were due to nerve compression then possibly both sets of nerves would have to be compressed. This, I guess might be possible, but the compression of sensory nerves causes totally different symptoms to RLS.

Furthermore, where are these nerves? He does mention nerves in the leg. I wonder then there'd have to be compression in both legs, this seems unlikely.

I presume also then it this were to happen in the arms, then by his theory, then the nerves being compressed would have to be in the arms. Then I guess it would be possible to get restless arms without having restless legs.

Restless legs (the condition) can affect the arms, but it usually occurs in the legs first and can spread to other parts of the body. I don't see how compressed nerves can spread like that.

Nerve conduction studies, which he refers to, are not used in diagnosing RLS. Where they are used it is to eliminate other conditions, e.g. neuropathy, and if the nerve conduction studies fail to find any abnormality, this strengthens the diagnosis of RLS.

If he's right that all cases of RLS are caused by A compressed nerve then this doesn't actually explain why iron treatment and the medications used for RLS can, in cases, totally eliminate symptoms. They can't treat compressed nerves!

Nor does his theory explain the hyoperarousal that RLS sufferers experience.

It is true that compressed nerves can cause a variety of symptoms, some of which may mimic RLS. It's also posible that compressed nerves can excacerbate a pre-existing RLS.

However the majority of sufferers who have primary RLS, it is clearly inherited and new evidence suggests that this may also be true for those with secondary RLS. Compressed nerves are "acquired" not inherited.

My own thoughts on this video is that this is apparently a surgeon who is trying to promote his surgery business by apparently trying to make believe there is a cure for RLS.

I find this exploitive and immoral.

sciencedirect.com/science/a...!

[Munroist in reply to Hidden]

If RLS was caused purely by conditions outside the brain it is also hard to explain why in most cases there is a relationship with time, with most people’s RLS worsening evening and overnight. I suspect the state of the nerves in the body I has some effect on the way RLS is experienced e.g. the more excited or damaged the nerves the more susceptible to RLS but I haven’t seen solid explanations of why this might be.

[Roblylegs]

I have no idea as im not a DR and ive been learning about this annoying Syndrome for over 25 years .I shared the video of the DR above as i thought others might like to judge for them selves.

[Hidden in reply to Roblylegs]

Yes of course, thanks for sharing the video and for your post.

I'm sure you did it with the best intentions.

I have obviously made my own judgmemt and have shared my view also with good intention.

What concerns me is not everyone is knowledgeable about RLS and may actually believe what this guy says.

It will be particularly pursuasive, (for some) that he is (apparently) a doctor. Add in some scientific sounding (mis)information, some may find it convincing.

I have no criticism of you or anybody who's tempted to believe what appears to be nonsense.

I suspect however this guy is morally bankcrupt.

There was a GP in England who was practicing for decades too, until it was discovered he was a serial murderer.

[MumofSam]

I’ve got a little nobbly lump around the area of the front of each of my shin bones. Always just assumed it was one of those things and nothing to worry about. And yes, it hurts if you keep pressing on them. So I’d suggest don’t press on them as they’re probably veins or nerves etc near to the surface so will hurt if you start prodding them. Nothing to do with RLS though. I’ve got other pressure points around my body that affect RLS, but not these.

[Roblylegs in reply to MumofSam]

Hmm interesting as when i put pressure on these ares i do get relief.and after being told its just muscle tissue .As a result of the U/S i guess i have to believe them .