RLS and vaccination for Covid 19 - Restless Legs Syn...

Restless Legs Syndrome

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RLS and vaccination for Covid 19

Gabbii profile image
43 Replies

Hello, I wonder if anyone have information or experience about vaccination for Covid 19. I have been offered vaccination and my consern is if it can affect rls negatively. I would be grateful for answers.

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Gabbii profile image
Gabbii
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43 Replies

I guess this is something that's going to be recurring over the next few months.

I myself, and several other members have reported that they have had the vaccine without any ill effect.

Gabbii profile image
Gabbii in reply to

Thank you so much for your answer Manerva. Just to let you know, I'm in no way against vaccination in general. Speaking of wich, have you or anyone had experience in having or heard anything about getting Covid and having rls?

in reply to Gabbii

I've not heard anything, sorry.

Gabbii profile image
Gabbii in reply to

Ok, thanks for your reply!

Annieapple profile image
Annieapple

I am happy to say have had the vaccine without any effect on my RLS...I have the flu vaccine every year and that too has no effect on my RLS...

Gabbii profile image
Gabbii in reply to Annieapple

I'm happy to hear that Annieapple, thanks for sharing!

Gmc54 profile image
Gmc54

I had mine about a month ago. No effect on my rls at all thank goodness.

No effect on my RLS either ...... still as bad as ever. The thought of getting severe Covid is even worse than having very severe RLS. Covid is a nasty & dangerous disease

papparay46 profile image
papparay46

Hi, I have received the 1st Covid 19 jab and it has no effect on my medication for RLS. Go ahead and get the jab! 👍😁

Lambretta175 profile image
Lambretta175

Had my first jab one month ago.Had no effect on my rls.

Lapsedrunner profile image
Lapsedrunner

I had my first Covid vaccination over a month ago, no change to RLS . Please have your vaccination to protect yourself and others 😊

Swimming2018 profile image
Swimming2018

I have had the vaccine recently without any ill effects. Thank goodness

Gabbii profile image
Gabbii

Thanks to everyone who has shared their experiences. I'm relieved to hear that the vaccination didn't have a negative effect on rls.

Boxer215 profile image
Boxer215

I had quite bad reactions to the AZ jab & for 2 nights my RLS went away. Now the vaccine side effects have gone & RLS has returned.

BBMBRB profile image
BBMBRB

I'm a pharmacist working in a vaccine centre and have not heard of this being an issue Ive had both doses and they didn't affect my RLS

gypsy49 profile image
gypsy49 in reply to BBMBRB

I've just put a post about my RLS going nuttier than it already was i have it 24/7 before the vac think is there was 48/10 id be there too sleeping less than 6 hours a week before jab was sleeping about 8 to 6hrs a week whole body won't calm down due second jab on the 3rd Aug hmm... i've not read anyone else had a problem yet was kinda hoping i would to see what they are doing to calm it ... of course im pleae no one else isn't suffering

Pyrogent profile image
Pyrogent

Hi Gabbi, I have had my Covid jab (1st) and no effects to RLS or any other reactions or ill effects. Regards...

MFNS profile image
MFNS

I had the Moderna Vaccine. The first dose ....no problem. After the 2nd dose up during the night with chills, low fever, and body ache. Completely knocked me out for one day.. i have spoke to other people including my Granddaughter who is a Nurse with similar experience.It had no effect on my RLS

Guitarpickin profile image
Guitarpickin

No effect for me with the first Pfizer shot. We’ll see about the second one. Glad you have access to the vaccine!

fishinphil1946 profile image
fishinphil1946

My wife and I have had both shots. I have not noticed any affect on my rls or peripheral neuropathy.

dklohrey profile image
dklohrey

Recently got the phizer covid vaccine (first shot) and have had no effects on my rls.

Born2BWilds profile image
Born2BWilds

I've had both my Pfizer shots and no reaction or increase in my RLS.

AmyMac5 profile image
AmyMac5

I'm another one who has had the Pfizer vaccine, about a month ago. Even though I felt achey and generally yuk for a few days there was no effect at all on my RLS.

Guitarpickin profile image
Guitarpickin

Wow, really? You may turn it down if it’s not Pfizer? I sort of felt like receiving any of the vaccines was lucky and would have taken whichever they offered. If you have room to be picky about it though, maybe hold out for the new Novavax vaccine! It sounds like it may be the best so far!

Lapsedrunner profile image
Lapsedrunner

I am a vaccinator in the UK, I give both Astrazeneca and Pfizer, depending upon vaccine supply. Both are well tested and effective, there's nothing to choose (unless you have had an anaphylactic reaction, when AZ would be recommended)

I had Pfizer as that was what was being given at the time, I would have been happy to have either. The best vaccine is the first one that you can have!!

Gmc54 profile image
Gmc54

Pfizer

Lapsedrunner profile image
Lapsedrunner

why?

3Chihuahuas profile image
3Chihuahuas

Just had my second vaccine of Maderna. No problem with RLS. Did have one day feeling yucky but still glad I got the vaccine.

Munroist profile image
Munroist

Hi Gabbi, I had the Oxford/Astra Zeneca jab yesterday and was feeling rough so went to bed early last night. However I had the best nights’ sleep for months if not years, no waking, no twitching etc. !! Looking at the responses that’s not typical although boxer215 was similar. However it certainly didn’t make it worse.

Lapsedrunner profile image
Lapsedrunner

We’ll agree to disagree then.

The major downside of your plan is that you will be unprotected, I hope you stay well

Lapsedrunner profile image
Lapsedrunner

What do you mean?

Lapsedrunner profile image
Lapsedrunner

Who are “they”? This is always an important question when googling

I had the Astrazeneca vaccine 5 weeks ago, had mild side effects the next day, i slept on and off all day with no sign of RLS til 11-00 that night , didnt matter to me which one i got as long as i got vaccinated.

Lapsedrunner profile image
Lapsedrunner

"There is no evidence yet that AstraZeneca’s vaccine caused the clots."Did you read the article? The above quote comes from it.

Also it does not refer to "efficacy" which is what you questioned.

I think you are just trying to be alarmist, the original post that you have replied to simply asked if receiving the vaccine had made any difference to anyone's RLS, the answer seemed to be a resounding "no"

This addresses efficacy, all of these rates are good. No vaccine gives 100% protection.

economist.com/graphic-detai...

Goldy700 profile image
Goldy700

I am pro vaccine but when I read this from top expert I am starting to think again about the vaccine.A LEADING global environmental virologist and microbiologist for 30 years and involved in human vaccine development for 23 years with various major pharmaceutical firms, Dr Geert Vanden Bossche warns that the global vaccination programme amid the global pandemic does more harm than good.

Creates more asymptomatic cases to spread the virus as the vaccines do not prevent infection and transmission;

Merely suppresses COVID-19 symptoms and can prevent hospitalisation and deaths. But at what price?

only stimulates artificially induced antigen-specific antibodies and not natural killer (NK) cells needed to neutralize the coronavirus effectively;

Allows antigen-specific antibodies, which may not work on new variants, to remain permanently and compete with, undermine and even destroy capable and loyal warrior NK cells;

Helps create new variants and “teaches” the virus on “viral immune escape”; and

It is a “lose-lose” situation that is dangerous at all levels, emphasizing that dealing with the coronavirus and pandemic must be based on science.

youtu.be/ZJZxiNxYLpc

Lapsedrunner profile image
Lapsedrunner in reply to Goldy700

Regarding transmission...

news.sky.com/story/covid-19...

Lapsedrunner profile image
Lapsedrunner in reply to Goldy700

He’s a veterinarian.

He seems to mainly hang out on Linkedin ( more usual in business rather than science)

He seems to be a believer in herd immunity (without vaccination)

Viruses will always mutate with or without vaccines , we learn that in school

There are bigger brains than his working on the problem and my previous reply addresses transmission, vaccines are effective in reducing transmission

in reply to Goldy700

I know who i believe and trust.

Lapsedrunner profile image
Lapsedrunner

I am not confused

Idc13 profile image
Idc13

We just had our second shot and hasn’t affected my rls at all.

V1974 profile image
V1974

I had astrazennica vaccine and no effect on my RLS for either better or worse. Feeling very lucky that we have the NHS vaccination programme in the UK and that I was called in for my jab earlier than I expected.

Pollyesther profile image
Pollyesther

I had my second shot a week ago and my RLS has disappeared completely! I suppose it may come back again though. Hope not as it has been a great relief.

Ginger337 profile image
Ginger337 in reply to Pollyesther

Hi pollyesther - What vaccine did you have? I am due to book mine and am trying to get one that mine reduce or alleviate symptoms completely.

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