Surgery and RLS advice

[Jumpey]

Hi. I'm having surgery for breast cancer soon and know there are certain drugs I need to avoid because they exacerbate RLS.Is it only anti- nausea drugs I need to be aware of or is there anything else I need to avoid ? Thanks in advance. X

[Joolsg]

Anti nauseates to avoid include

ANTIVERT, Atarax, Benadryl,Bonine,Compazine, Phenergan, Reglan, Thorazine,Tigane,Trifalon.

Safe alternatives: Kytril, Vistaril & Zofran.

Mention to the anaesthetist now so they can make arrangements for your surgery.

Good luck with the surgery & ongoing treatment. My neighbour has just had successful surgery & is now starting her hormone treatment & a one off radiotherapy dose.

Great to see the NHS is still carrying out essential cancer treatment in some parts.

[Jumpey in reply to Joolsg]

Thanks so much for the info and your good wishes. Always good to here about successful treatment. X

[Heatherlss]

Good luck for your surgery !

[Jumpey in reply to Heatherlss]

Thanks so much for your good wishes.x

[LotteM]

Jumpey, you may search HU for 'medical alert card', as there are several posts on it. The us rls.org has one, and I think also rls-uk.org. It may be easier or more acceptable to bring a printout of those to the hospital than a copy of joolsg's reply. Although the content will be the same.

[Jumpey in reply to LotteM]

Yes I will do that. Cheers.x

[Pam34]

Hi Jumpey

I had surgery for triple negative breast cancer last August. I was only in for the day and was back in my own bed in the evening. And no drugs needed.

Prior to surgery I had 4 months of chemo. The first 3 treatments of ENC didn’t affect my RLS but I then had 4 treatments of carboplatin and abraxane which caused peripheral neuropathy and sent my RLS through the roof. I was also on steroids, antihistamine and strong anti nausea tablets which may have contributed. I’m pleased to say that my RLS soon reverted back to pre chemo levels within a couple of weeks of my treatment finishing.

Good luck with your treatment. I hope everything goes well for you.

Pam

[Jumpey in reply to Pam34]

Thanks so much for your response Pam. Very useful information to bear in mind. I hope you are fully recovered now.Thank you for your good wishes.x

[Bravetank]

When I had breast cancer treatment they gave me Metoclopramide for nausea. This was absolutely awful - really aggravated my RLS. When I was put back on Ondansetron I was much better. Also Omeprazole for stomach acid made my RLS worse too so I stopped taking it. I learned that my medical team did not know anything about RLS so I had to research everything they gave me. Good luck with your surgery. Hope everything goes well. I had surgery, chemo, radiotherapy & Herceptin from 2017-2019 but I am much better now.

[Jumpey in reply to Bravetank]

I'm so glad you are better.And tha k you for the helpful info and good wishes.x