I wanted to tell everyone about my experience with a product that was recommended be a friend’s father-in-law, who used to be a doctor. He is retired now and suffers from neuropathy and uses this product. My friend spoke to him about my RLS, which is mostly controlled by Ropinirole and Gabapentin, but I have early evening problems regularly and occasional nighttime as well. He recommended Theraworx. It is a foam which I pump out and rub on the area affected. I am not joking...twice now, it has completely stopped the RLS! I spent just over $19 for the bottle at Target here in the US, which seems to be the going price at Amazon and Walmart as well. It has a bearable scent and rubs in quickly. I hope someone else finds this helpful!
Theraworx: I wanted to tell everyone... - Restless Legs Syn...
Theraworx
Great news.
What are the ingredients?
that helped me re muscle cramps but not RLS. from Amazon:
Ingredients. Theraworx Relief is made up of a proprietary blend of safe, gentle ingredients that work together to prevent and relieve muscle cramps and spasms. These key ingredients include magnesium sulfate, colloidal silver, citrus grapefruit extract, aloe, allantoin and vitamin E.
I expect it won’t work for many, but I was shocked when it worked immediately for me. I will say I used as soon as I the RLS set in each time. I was a little skeptical, but the Dr said that I would be pleasantly surprised. So, I think he must have been recommending it before his retirement. As with everything we all have tried, some things work for some and not for others. I wish the price tag could be lower, but at least you have something on hand for muscle spasms if it doesn’t do anything else. I have not had to use it for that yet. As I said, he uses it for his neuropathy, so he believes wholeheartedly in it’s use for nerve issues. I didn’t mention that this doctor had been an O.D., so he believes in more homeopathic types of care vs. drugs...for those trying to avoid the typical medicines out there.
It's just thought but if you have early evening symptoms then perhaps you are starting to have augmentation due to the ropinirole.
Wise then to use this remedy.
Yes, I believe I am. I’ve titrated off of .5 mgs of the Ropinirole so far. I see my doctor again on the 19th of September and will begin the process of cutting back again, however, I am only on 1 mg of regular Ropinirole the other 2 mgs are in extended release form and there is no smaller pill and they can’t be cut. Not sure what the options will be. More Gabapentin I’m sure. Hoping for legalized marijuana here in PA, which may help significantly. I do suffer a lot in the afternoon, but hate to use the Theraworx for that, when I can be cooking or doing something else. I just don’t sit much when it is acting up.
If you didn't originally have symptoms earlier then they appeared and this is augmentation, then as you reduce the dose of ropinirole the earlier symptoms should fade.
You can't reduce an extended release tablet by cutting it. You'll have to switch to regular release ropinirole entirely.
It's a bit chicken and egg, I presume you started taking extended release because you were getting symptoms earlier. If so, this doesn't seem to be a good tactic, since it's the ropinirole that caused the earlier symptoms.
I figured I would end up moving off of the extended release and over to regular Ropinirole...what a mess this stuff is! I pray the Theraworx works for me all the time!
Yes, these drugs create such a mess.
I think when they were first used for RLS they must have been seen as almost miracle cure.
I know that when I first took a dopamine agonist for what was severe RLS at the time it instantly got rid of all my symptoms overnight
The complications of long term use were obviously not anticipated.
It is a disgrace that decades later that after these complications have been known about for at least ten years, drug manufacturers are reluctant to acknowledge them and doctors continue to prescribe them without any warning of the risks or knowledge of how to properly manage RLS.
Ckeck first with your Physcian. I have restless leg syndrome all day and night. The secret IS "Once you sit back in your recliner and start to be somulent( pre-sleep, the brain will triggeres the leg movements. 1)you are active until noon and the brain knows it so, no medication.2.) After meals you recline and the brain knows it and starts the leg motion, I anticipate the brain knowledge and take one ropinrole .5mg at 12;00 noon. 3. )I take one at 5:00pm to turn off the brain action for the legs. At sleep time, I take 2 ropinrole .5 and 2 gabipentine. 300mg and 1 trammadole. I have done this for a year and DO NOT INCREASE ANY, (note Gabipenent at 300MG is capsule form. ( Note)THIS IS FOR NERVE DAMAGE< FOR NERVE DAMAGE< FOR NERVE DAMAGE get it)? A DIFFERENT MANUFACTURE make pills for RLS, for RLS, for RLS. Do not, DO NOT take the gabapentine 600 pills with Ropirole of any strength. Many Docs do not know the difference and leave it up to the Pharmacy.Read this 1000times. Good luck . I am 90 yrs old I take the tramadole at night to calm lying on a involved left shoulder. Please understand the reason for each drug you use-go one line and educate yourself Do not fully trust your medical persons. They are sometimes parrots Only you can study your situation fully. I do.)
A great deal of what you say applies to me, however, I do not have nerve damage, but I do have epilepsy. I have been on Ropinirole for years and the previous “parrots” continued to increase the dosage. I am augmenting now. My new doctor seems very knowledgeable and has introduced Gabapentin over the last 9 or so months along with the epilepsy drug Zonisamide. I was only experiencing the RLS in the early evening due to augmentation, but I decided to start taking Glucosamine Chondroitin to help with sore joints since I began walking. THAT CAUSED HORRIBLE RLS AT NIGHT after about a week and that is when my friend spoke to her father-in-law (doctor) who recommended the Theraworx. I did stop the Gloco/chondro and within a couple of days I was much better, but I still have an occasional bout with nighttime RLS since. All this to be discussed with my new doctor on September 18. I appreciate your insistence to read up on everything. We must be 100% proactive!
It's not true that there are different versions of gabapentin for different conditions i.e. one for nerves and another for RLS. Gabapentin has the same chemical formula no matter who manufactures it or what they call it. Reptitions and capital letters doesn't make it true.
The effect of all versions of gabapentin is to block the action of the neurotransmitter glutamate. This makes the nerve cells using glutamate less excitable which means it can act as an anti-epileptic, a nerve pain blocker and reliever of RLS symptoms.
Additionally, altjhough gabapentin is prescribed for nerve pain it does not treat nerve damage, only the consequences of it.
Furthermore, RLS doesn't normally occur equally all day and night. It is a "sleep related disorder". Since sleep is normally regulated by various circadian rhythms it is usually only occurs are night or is worse at night when dopamine levels are low.
RLS symptoms occurring equally "at any time" suggests severe augmentation hence the strategy of taking any ropinirole at all is ill advised.
Gabipentine 300 mg CAPSULES ONLY are for nerve repair and Seizure Prevention.( 600 mg PILLS )is by another manufacturer for Restless Leg Syndrome. I hope this is a lead
All Gabapentin is the same exact chemical. I was going to say it does not repair nerves but apparently a mouse study showed it may help restore damaged nuronal pathways. But this has Only been tested in mice so far. I have been on 300mg, 400mg and 800mg gabapentin for RLS.
Thank you so much for this. I read your post and as I cannot lose anything (tried most of the things already) thought I give Theraworx a try. Could not believe the result. I have huge problems sleeping at night, and also cannot sit down for longer than 15 minutes before RLS kicks in. So last evening, I sat down to watch some TV, RLS started quite quickly so I rubbed in some Theraworx. Within 10 minutes, RLS stopped. Will try it again tonight, just in case it was a fluke last night. Thanks for the recommendation
I am thrilled to hear to hear this and my friend’s father-in-law will be so happy to know he is still doing good in his retirement. I, like you, find it hard to believe that something so simple can work and remain a wee bit skeptical. A 3rd time should push over the edge though! I wish everyone could experience the same results. Blessings and much luck to you, my friend!
What’s the word... fluke or did you have another good evening?
Good news, I had another good evening in front of the TV without having to walk around the living room. It seems to work for short periods, but hey, that's good enough. Now I just need to work on my sleeping and current medication, but I have started to put a plan in place for that. Waiting for my doctor to reply to my letter to him yesterday, questioning current medication and request to be referred to neurologist and have my ferritin levels tested. Watch this space. But would definitely recommend Theraworx. Thanks for that wcp2008
Wishing you much luck with a permanent solution to this horrible problem. Remember the words of everyone about Ropinirole and other dopamine agonists. Be armed with information when you see the neurologist.