Another underlying condition together with rls.

[Katerina22]

Hello everybody!!Recently a brilliant doctor found out that i had another condition together with rls.Its called "plmt"which means painful legs and moving toes syndrome.Its a rare moving disorder syndrome.Many of my movements were due to that.She did botox on my leg and toe and the syndrome almost dissapeared.Thats because botox relaxed my muscles and the movement dissapeared.I have to repeat the botox every 3/4 months.I feel so greatful!

[Joolsg]

That’s brilliant. Has it helped your RLS in any way?

[Katerina22 in reply to Joolsg]

Plmt was mistaken for years as rls.So whatever drugs i used for rls it didnt help.I have both plmt and rls.But since taking neupro for rls(1 year) and having botox for plmt i am ok!!Rls bothers me sometimes but i am ok!!

[LotteM]

Interesting. Learning about new disorders every day. Glad you found out and gound relief. Be careful with the Neupro, though. If you start to need more (I hope not), then don’t, but rather stop.

[Mum007]

Is this not the same as PLMD. Periodic limb movement disorder, or is it something else?

[Katerina22 in reply to Mum007]

Its a different condition.

[Hidden in reply to Katerina22]

I've never heard of plmt before! Great that you got diagnosed and treated.

[Sky7777]

Hi Katerina, Thank you for sharing your findings. I already use botox, so this would mean I need another area treated....

Where exactly in the leg and foot does the botox get injected? Whatsapping my Derm now...

[Katerina22 in reply to Sky7777]

I had movement at the big toe and at the lower leg.The big toe went up and down without me being able to control it and i also had contractions at the lower leg.The bottle of botox is BOTOX PD.INJ.SOL 100U/VIAL BTx1VIAL.My doctor used about 1/4 of the bottle.

[Sky7777 in reply to Katerina22]

Thank you for taking the time to reply Katerina. I am meeting w/ a Dr. about Stem Cell Therapy. They also work on rejuvenation so I will share your info when I go meet him. I will keep you posted.

[CoMtWo]

What a great idea. I've periodic limb movement (my sleep doc thinks) in addition to RLS. While my toes aren't painful, my feet DO tend to "wash" themselves for an hour or so when I first go to bed. writhing against each other and they feel horribly hot (inside), not apparent to my husband. Where on your legs and toes are the shots placed? And do you have any idea how much botox is injected with each shot?

[Hidden in reply to CoMtWo]

I wouldn't rush out and get botox for your RLS/PLMS, without further evidence that it actually works for these. Katerina's botox worked for her plmt, which is an entirely unrelated and different condition.

Also, I believe botox relaxes muscles so it acts locally, whereas the symptoms of RLS/PLMS originate in the Central Nervous System.

[CoMtWo in reply to Hidden]

Thanks. Good point.

[Katerina22 in reply to CoMtWo]

See my answer to Sky 7777

[Sara_2611]

Oh I see -I ll carry on with my cream