I had an appointment with Dr B today!! I'm so relieved after 6 yrs suffering, trail and error with PC and neurologists who dont know enough about RLS and now confident that together we'll figure out the right med combo that I might sleep longer than 3 hrs block. I'm thankful to have found this blog and to you all who suggested contacted Dr B.!!
Bring on the good night sleep! Thanks everyone 😍
Amen! Dr B wrote in a book that every RLS sufferer can be helped. If only other Doctors realised this and had the patience required to try.
I am not a Jesus type of person, but in your case, so happy you saw Dr. B and i know he will sort you out, you have seen one of the best. I wish we in the UK also had a Dr. B.
I am happy for you.
So.... what did you discuss and especially what did he suggest?
He suggested 5mg methadone twice a day, along with sinemet 25-100 only for break through symptoms at most 3 times a week as not to augment. However, I've NOT gotten my scripts as in the US theres supposedly a opioid epidemic and pharmacists can deny filling the script. I've got a head pharmacist who says methadone ISNT a treatment for rls. Ignorance is bliss! Also, insurance is questioning it too. So it's not smooth sailing as of now.
OH NOOOOOOOO!! I work with the pain community every day, and this is the kind of story we hear every day. We are fighting and fighting this BS of pharmacists overriding doctors. They need to let doctors treat their patients, This makes me so angry and sad for you. Call Dr. B, if you have not, and tell him what is happening. Pharmacists and insurance companies are making it harder than it needs to be! 
You can PM me if you want to. I work with this 24 hrs a day, more so than just RLS now, because of these problems.
I've complained to the store and called the corporation of the store pharmacy and file a complaint over the phone. Come Monday, someone is going to get the script filled for me! If not, I'll be sending you a message. Thank you for offering to help.
So pleased for you. What medication and advice did he give?
Also not a Jesus person but Dr B is an absolute star. So pleased you saw him & confident his scientific expertise will help you sleep and deal with the pesky RLS symptoms.
Who is Dr. B? I am in the US.
Look at this website which is Dr. B's you will see who he is. rlshelp.org
Mona7, so excited for you. Just knowing you'll be getting more then 3 hrs a night thrills me. I've been there done that weaning off Mirapex. Its was horrible. Prayers you'll be finding the right medicine combination soon. God bless.
Thank you.
stay blessed
Wonderful news!
I'm in California, US about an hour and a half from Stanford.
Well, you can thank Jesus or whoever you want. 
Call Dr. B back and tell him. This will not be the first time he has run across this problem, I am quite sure,. xx
I called Dr B's office and left a msg on Thurs. for the medical assistant alone with sending a message through patient portal back on Monday night. This coming Monday I'll call and leave a msg for Dr B and Dr Gibbson.
Sorry about the delay. I am in England.
The pharmacist delayed by 3 days sending out the authorization for doc and insurance just because he could! Then lied about the date. He delayed it a few more days asking for a treatment code that would take minimum 48 hrs after doc and insur approved on the 8th day. I confronted him in his behavior on the 9th day and he refused to fill. This our reality!! Now, starting over at my old pharmacy who knows me better. Well see!
How frustrating.!! Good luck with your old pharmacy.
Hi
I have just been re reading the thread and wondered whether you got sorted? How are you getting on with the methadone, assuming you got it. I am curious as Dr B suggested it to me but at the moment the cocktail I have is ok.
Summary of RLS resources 
thank you, thank you! 
My RLS has settled for the time being. Thank you for the information and support!
Thank you one and all!
MY STORY sad but true
