Rls and shaky hands and legs after movement? Only during the day...it feels like muscle shortening? Please hel p with any info...

[Sandee007]

I have had these symptoms for 2 years:

Arm and leg RLS.

Twitching all over the body and muscle cramps.

Walking sometimes difficult ,it feels like my muscles are to short and I have

contractions all the time when I walk or grab for something.

There is something terrible wrong with my grasping movement.

Please help me with any info!!!

My foot goes numb a lot and I drop things sometimes.

Doctors said:No cancer-Ms-Als-Parkinson-cancer-no Lyme-cortisol all ok...so what do I have?

Neurologist said RLS but does that make your hands shake? (only after movement)

Also I do have venous insufficiency and all of these problems started after EVLT-operation.

I have no rest tremor. They only shake a little bit but walking is difficult and I always have internal vibrations present.

Another doctor said I do have a little bit of Stenosis ,can this be the problem?

Sometimes I feel I have so much energy inside,I am going to explode...

Thanks for any help,Sandy

[Hidden]

I replied to your other post.

This one adds further information.

Even more so, doesn't sound like RLS.

If you mean stenosis in your gut somewhere, it could explain the bloating and malabsorption of nutrients. This could lead to Vitamin deficiency and/or electrolyte imbalance.

The tremor, shaking, foot drop and numbness all suggest peripheral neuropathy. (possibly caused by Vit deficiency or electrolytes)

I suggest you see your GP and get a full range of blood tests, everything!

Insist.

Then take it from there

[Sandee007 in reply to Hidden]

I had all the blood-tests you can have...only thing I saw was high Kalium.

My prolactine was extremely high...

Thanks for the reply...

I really am grateful.

[Hidden in reply to Sandee007]

How high was your potassium? (Kalium) Do you know the numbers?

A normal range of potassium is between 3.6 and 5.2 millimoles per liter (mmol/L) of blood. A potassium level higher than 5.5 mmol/L is critically high, and a potassium level over 6 mmol/L can be life-threatening

A normal level of potassium is essential for nerves and muscles to communciate with each other. This includes heart muscle. Do you have palpitations?

High potassium could produce your symptoms of shakiness, weakness (dropping things), numbness and tingling.

High potassium inhibits intestinal motility which could lead to bloating.

A very high of prolactin can be caused by various things.

Did all the tests include Thyroid function, Liver Function, Diabetes and Pituitary.

Excluding these -

I AM NOT A MEDICAL EXPERT but a combination of very high prolactin and high potassium suggests kidney disease. What explanation were you given?

[Sandee007 in reply to Hidden]

Oh..thanks for so much info. My number was 5.5 for Kalium. My prolactine was 140,they also checked me for pituitary...because they thought it was a tumor,but MRI for brains-Scan-Ctsan was all good. Cortisol also good. Diabetes was also not the problem...How do you check liver function and thyroid? (sorry for my english as I am from Belgium)

No palpitations present but I suffer a lot from internal vibrations that are coming out a bit in shake hands,only after movement.

Again...thanks for your time and info!!

[Whippetmama in reply to Sandee007]

Some of your symptoms are very similar to mine right before my first spine surgery. I would suggest an MRI of your cervical spine.

[Hidden in reply to Whippetmama]

Problems with cervical spine do not explain raised potassium and prolactin. If your problem has a single cause it has to be able to explain ALL your signs and symptoms.

Try blood tests first - cheaper than an MRI if you have to pay

[Sandee007 in reply to Whippetmama]

Thanks!

[Hidden in reply to Sandee007]

I seem to recall replying to this yesterday but my reply seems to have disappeared. I might have forgotten to press the reply button.

Both thyroid and liver function tests are blood tests.

The thyroid test should test both thyroid function and pituitary, because one depends on the other.

I still think that this may be early kidney disease.

A renal function test is another blood test. If there is kidney disease both potassium and urea will be raised, albumin might be low and creatinine high. The blood test will also give an estimated GFR. GFR tells how well your kidneys are functioning.

I also suggest you look at the healthunlocked kidney disease community.

Your symptoms including reduced bowel motility hence bloating would happen if potassium levels are high.

This is not a diagnosis, I am not a doctor.

If you're having to pay for blood tests, then I suggest the renal function first. If you've already had one what were the results?

[Hidden in reply to Hidden]

I re-read your potassium level which according to the information I found is "critically high". I don't know how your health system works. If you see a doctor and have blood tests and there's a problem, don't they let you know?

Or do you have to see them again? Do you have to pay each time or do you have insurance?

Whatever your situation, you need to do something a "critically" high potassium is very dangerous. I'd urge you to do something as soon as possible.

[Sandee007 in reply to Hidden]

I never get a lot of info about my blood results from doctors...

[Hidden in reply to Sandee007]

That sounds terrible. I presume that laws in respect of information in Belgium are the same or similar as in the UK or Europe generally and you have a legal right to have access to any medical information anyone has about you, That includes blood test results.

I am lucky because I have on-line access to my test results. I just go on-line and get them. However if any if them are of concern the doctor has a moral responsibility to tell me even if it isn't a legal responsibilty.

If necessary, I can go to the doctoirs surgery and ask for a printout.

How do you get your results? Do you get a printout, do you phone and they tell you? Do they even tell you what tests they're doing?

ASK THEM

I'd say, you really do need to find out if the doctor did a renal function test and what ALL the results were. If you can't get an explanation off them, then you can check for yourself, normal levels are easily found on the internet and if any results are abnormal you can also find out what they mean on the internet. Or you could post them on here.

If my interpretation is correct, and I hope it isn't, then your potassium level is dangerously high. If this is true then you need to do something with some urgency.

If your potassium gets any higher, 6 or above you would need IMMEDIATE medical treatment.

If it turns out that it is not so bad at least you will be reassured - and so will I!

Please let me know.

[Sandee007 in reply to Hidden]

Hello again..I don't get much info about blood test,we go to the normal house doctor and then he tells me what the specialist told him,that's it.

We get very little info about blood test - except if you have Lyme-cancer or whatever...

They told me the values are a bit high but not that high!

I have to say that a lot of specialists do NOT LISTEN what my problems are.

If they don't see you bleeding then there is nothing wrong and that is what's frustrating me. In my heart I know something is VERY WRONG but I can't do anything about it. I am stuck. And all of this costs a lot of time and money.

Only thing I can do is to wait for more symptoms to come and then maybe I get a diagnosis or...it's to late,I don't know it anymore.

We are going live TODAY and take everything we can out of life,that's the best cure.

Thanks for listening and all of your info!

[Hidden in reply to Sandee007]

OK, you can only do what you can do.

I don't understand your health system, we have Community "surgeries" here where there are General Practitioners. If the GP thinks we need a blood test, a nurse will do it. We get the results from the receptionist at the surgery.

My GP surgery is about 200 metres from where I live.

We only see a specialist at a hospital if there's something more serious and the GP has to refer us, we can't just go and see a specialist.

I think it's a difficult choice you're making. To get to the bottom of your health problems is apparently going to be expensive. I'm sorry to say I think they will probably get worse and could cause you to have accidents, drop things or fall etc.

I have to leave you with the information that if your potassium should rise to 6 mmol, it would be a life threatening emergency. Your heart could stop,

So please take care.