URGENT: IF YOU LIVE IN ENGLAND, PLEASE GIVE US JUST FIVE MINUTES? IT WILL HELP US TO IMPROVE THE QUALITY OF RLS SERVICES

[Daragh]

We may be moving up the list in the Neurological Alliance's 2019 patient experience survey but we are still behind a lot of lesser known conditions, which will give the impression that RLS is rare. RLS IS NOT RARE but we can't move up the list without your contribution.

If you live in England, it REALLY important that you complete the survey.

This page has over 11,000 users so there must be more of you in England who have not yet completed it - so far there have only had 340 responses.

Please do not use this post to challenge the survey, we know it is imperfect and we know it is only for people in England. Instead, share it with your friends and family, and encourage people in England to complete it.

Without your help, our ability to influence the future quality of health services and social care in England for people with RLS will be reduced.

Thank you

myonlinesurvey.co.uk/NA19RLS/…

[Jose651]

Bump.

[Joolsg]

Come on English people - complete the survey!

Thanks for posting Daragh.

[Pam34]

We can’t moan if we don’t do our bit to raise the profile of RLS. Like they say, it’s not perfect but it’s a start!

[kika82]

Doneeee!!

[Kaarina Administrator in reply to kika82]

Thank you so much, kika82.

[Hidden]

I have already done ages ago. BUT , like Daragh has said, we must have many many members on here who are in the UK, SO come on people pleaseeeee do the survey. Only takes a few minutes of your time, this is one way you can help make a difference.

[Kaarina Administrator]

This survey closes on 22 March.

[Kaarina Administrator]

Please complete the survey as best you can, even if you have not seen a neurologist, and use the comment box at the end of the survey.

[LotteM in reply to Kaarina]

Just to reiterate the request....!

[Bardecho in reply to LotteM]

Done but don’t receive treatment.

[Kaarina Administrator in reply to Bardecho]

Thank you, Bardecho.

[John_naylor]

Done, see you in Sept at AGM!

[Kaarina Administrator in reply to John_naylor]

Thank you John. It is appreciated. We look forward to seeing you at the AGM on 7 September!

[DIDID]

Completed survey, Will be attending the AGM...

[Kaarina Administrator in reply to DIDID]

Thank you for completing the survey, DIDID. It is appreciated. We look forward to seeing you on 7 September.

[Tigger68]

Im from the uk and have just filled out the survey. Im now disgusted ive not even been sent to see a neurologist and my condition has not been taken seriously

[Kaarina Administrator in reply to Tigger68]

Hi Tigger,

Thank you so much to completing the survey. Not so many RLS sufferers have been referred to a neurologist and some that are referred come away from their appointment very disappointed, especially if the waiting time has been months. Neurologists are few and far in between that know about RLS. Members of this community often find they learn more here than from the medics.

[Kaarina Administrator]

The closing date for this survey is 22 March.

[Bairnie]

Just England? Not Scotland?