We may be moving up the list in the Neurological Alliance's 2019 patient experience survey but we are still behind a lot of lesser known conditions, which will give the impression that RLS is rare. RLS IS NOT RARE but we can't move up the list without your contribution.
If you live in England, it REALLY important that you complete the survey.
This page has over 11,000 users so there must be more of you in England who have not yet completed it - so far there have only had 340 responses.
Please do not use this post to challenge the survey, we know it is imperfect and we know it is only for people in England. Instead, share it with your friends and family, and encourage people in England to complete it.
Without your help, our ability to influence the future quality of health services and social care in England for people with RLS will be reduced.
I have already done ages ago. BUT , like Daragh has said, we must have many many members on here who are in the UK, SO come on people pleaseeeee do the survey. Only takes a few minutes of your time, this is one way you can help make a difference.
Im from the uk and have just filled out the survey. Im now disgusted ive not even been sent to see a neurologist and my condition has not been taken seriously
Thank you so much to completing the survey. Not so many RLS sufferers have been referred to a neurologist and some that are referred come away from their appointment very disappointed, especially if the waiting time has been months. Neurologists are few and far in between that know about RLS. Members of this community often find they learn more here than from the medics.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Restless Legs Syndrome
Anyone try compression stockings
RLS, Willis Ekbom DISEASE and Ekbom SYNDROME
